Supportive care needs of people with brain tumours and their carers

Janda, M., Eakin, E. G., Bailey, L., Walker, D. and Troy, K. (2006) Supportive care needs of people with brain tumours and their carers. Supportive Care In Cancer, 14 11: 1094-1103. doi:10.1007/s00520-006-0074-1


Author Janda, M.
Eakin, E. G.
Bailey, L.
Walker, D.
Troy, K.
Title Supportive care needs of people with brain tumours and their carers
Journal name Supportive Care In Cancer   Check publisher's open access policy
ISSN 0941-4355
Publication date 2006-01-01
Sub-type Article (original research)
DOI 10.1007/s00520-006-0074-1
Volume 14
Issue 11
Start page 1094
End page 1103
Total pages 10
Place of publication New York
Publisher Springer
Language eng
Subject C1
321015 Oncology and Carcinogenesis
730108 Cancer and related disorders
Abstract Goals of work: The diagnosis and treatment of a brain tumour may result in long-term changes in a patient's functional and social abilities and/or in a greatly reduced life span. A qualitative investigation was conducted to examine the supportive care needs of patients with brain tumour and their carers. Materials and methods: Overall, 18 patients and 18 carers participated in focus groups or telephone interviews, following a structured interview guide to elicit supportive care services of importance to these patients and carers. Main results: Six major themes were identified using the framework analysis method, including needs for information and coping with uncertainty, practical support, support to return to pretreatment responsibilities or prepare for long-term care, support to deal with social isolation and organize respite care, support to overcome stigma/discrimination and support to discuss potentially reduced life expectancy. Conclusions: Five recommendations to improve service delivery include: assignment of a dedicated member of the care team or case manager; proactive dissemination of information, education and psychosocial support; access to objective assessment of neuropsychological functioning; facilitating easier access to welfare payments; and services facilitating communication about difficult illness-related topics. Provision of services along these recommendations could improve supportive care of brain tumour patients and their carers.
Keyword Supportive Care Needs
Brain Tumours
Patients And Carers
Service Delivery
Oncology
Health Care Sciences & Services
Rehabilitation
Malignant Cerebral Glioma
Quality-of-life
Glioblastoma-multiforme
Family Caregivers
Randomized-trial
Follow-up
Spouses
Cancer
Information
Telephone
Q-Index Code C1

 
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Created: Wed, 15 Aug 2007, 19:47:54 EST