Investigating genetic discrimination in Australia: Opportunities and challenges in the early stages

Taylor, S.D., Otlowski, M. F., Barlow-Stewart, K. K., Treloar, S. A., Stranger, M. and Chenoweth, K. (2004) Investigating genetic discrimination in Australia: Opportunities and challenges in the early stages. New Genetics And Society, 23 2: 225-239. doi:10.1080/1463677042000237053


Author Taylor, S.D.
Otlowski, M. F.
Barlow-Stewart, K. K.
Treloar, S. A.
Stranger, M.
Chenoweth, K.
Title Investigating genetic discrimination in Australia: Opportunities and challenges in the early stages
Journal name New Genetics And Society   Check publisher's open access policy
ISSN 1463-6778
Publication date 2004-01-01
Sub-type Article (original research)
DOI 10.1080/1463677042000237053
Open Access Status Not yet assessed
Volume 23
Issue 2
Start page 225
End page 239
Total pages 15
Editor Peter Glasner
Harry Rothman
Place of publication United Kingdom
Publisher Routledge
Language eng
Subject C1
370602 Sociology and Social Studies of Science and Technology
730299 Public health not elsewhere classified
Abstract Genetic discrimination, defined as the differential treatment of individuals or their relatives on the basis of actual or presumed genetic differences, is an emerging issue of interest in academic, clinical, social and legal contexts. While its potential significance has been discussed widely, verified empirical data are scarce. Genetic discrimination is a complex phenomenon to describe and investigate, as evidenced by the recent Australian Law Reform Commission inquiry in Australia. The authors research project, which commenced in 2002, aims to document the multiple perspectives and experiences regarding genetic discrimination in Australia and inform future policy development and law reform. Data are being collected from consumers, employers, insurers and the legal system. Attempted verification of alleged accounts of genetic discrimination will be a novel feature of the research. This paper overviews the early stages of the research, including conceptual challenges and their methodological implications.
Keyword Biotechnology & Applied Microbiology
Genetics & Heredity
Life-insurance
Information
Risk
Disease
Family
Policy
Fear
Q-Index Code C1

 
Versions
Version Filter Type
Citation counts: TR Web of Science Citation Count  Cited 18 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 20 times in Scopus Article | Citations
Google Scholar Search Google Scholar
Created: Wed, 15 Aug 2007, 14:37:57 EST