Culturally and linguistically diverse patient participation in glioma research

Lwin, Zarnie, Broom, Alexander, Cosman, Rasha, Livingstone, Ann, Sawkins, Kate, Good, Phillip, Kirby, Emma, Koh, Eng-Siew and Hovey, Elizabeth (2014) Culturally and linguistically diverse patient participation in glioma research. Neuro-Oncology Practice, 1 3: 101-105. doi:10.1093/nop/npu009


Author Lwin, Zarnie
Broom, Alexander
Cosman, Rasha
Livingstone, Ann
Sawkins, Kate
Good, Phillip
Kirby, Emma
Koh, Eng-Siew
Hovey, Elizabeth
Title Culturally and linguistically diverse patient participation in glioma research
Journal name Neuro-Oncology Practice
ISSN 2054-2585
2054-2577
Publication date 2014-06-25
Sub-type Article (original research)
DOI 10.1093/nop/npu009
Open Access Status PMC
Volume 1
Issue 3
Start page 101
End page 105
Total pages 5
Place of publication Cary, NC United States
Publisher Oxford University Press
Language eng
Subject 2701 Medicine (miscellaneous)
Abstract Marginal communities, such as culturally and linguistically diverse (CALD) patients, have significantly lower rates of recruitment, accrual, and retention in cancer clinical trials. A combination of language and cultural barriers means that trial participation from CALD communities remains at suboptimal levels, which in turn favors research findings that are biased towards therapeutic effects or toxicities within the context of non-CALD populations. Here we outline some key challenges and implications for CALD patient participation in glioma research in countries such as Australia, where English is the language of governance and health services implementation. We highlight multistakeholder interventions to improve both investigator recruitment and participation of CALD communities in future glioma research, particularly in this era when global migration has come of age. Enhancing research participation of CALD communities ensures not only wider understanding of genetic heterogeneity to improve glioma outcomes but also equity in access to care.
Keyword Culturally and linguistically diverse (CALD)
Glioma
Research participation
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: HERDC Pre-Audit
School of Social Science Publications
 
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Created: Fri, 16 Mar 2018, 08:37:13 EST