Community knowledge of law at the end of life: availability and accessibility of web-based resources

White, Ben , Willmott, Lindy , Tilse, Cheryl , Wilson, Jill , Lawson, Deborah , Pearce, Angela , Dunn, Jeffrey , Aitken, Joanne F., Feeney, Rachel and Jowett, Stephanie (2017) Community knowledge of law at the end of life: availability and accessibility of web-based resources. Australian Health Review, . doi:10.1071/AH16234


Author White, Ben
Willmott, Lindy
Tilse, Cheryl
Wilson, Jill
Lawson, Deborah
Pearce, Angela
Dunn, Jeffrey
Aitken, Joanne F.
Feeney, Rachel
Jowett, Stephanie
Title Community knowledge of law at the end of life: availability and accessibility of web-based resources
Journal name Australian Health Review   Check publisher's open access policy
ISSN 0156-5788
1449-8944
Publication date 2017-03-30
Sub-type Article (original research)
DOI 10.1071/AH16234
Open Access Status Not yet assessed
Total pages 6
Place of publication Clayton, VIC Australia
Publisher C S I R O Publishing
Collection year 2018
Language eng
Formatted abstract
Objective. The aim of the present study was to identify online resources community members may access to inform
themselves about their legal duties and rights in end-of-life decision making.
Methods. Resource mapping identified online resources that members of the public in New South Wales, Victoria
and Queensland are likely to identify, and assessed the ease or difficulty in locating them. Resources were then critically
analysed for accessibility of language and format using the Patient Education Materials Assessment Tool (PEMAT).
Results. Identified resources differed considerably based on whether search terms identified by community members
or experts were used. Most resources focused on advance directives, enduring powers of attorney and substitute decision
making. Relatively few provided information about legal duties (e.g. powers and responsibilities of substitute decision makers) or resolving conflict with health practitioners. Accessibility (understandability and actionability) of resource content varied.
Conclusions. Although numerous resources on end-of-life law are available online, community members may not be
able to identify relevant resources or find resource content accessible.
Keyword end-of-life decision making
online resources
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: HERDC Pre-Audit
School of Nursing, Midwifery and Social Work Publications
 
Versions
Version Filter Type
Citation counts: Google Scholar Search Google Scholar
Created: Wed, 12 Apr 2017, 11:59:33 EST by Michele Ferguson on behalf of School of Political Science & Internat'l Studies