The parents’ perspective of the early diagnostic period of their child with hearing loss: information and support

Scarinci, Nerina, Erbasi, Ennur, Moore, Emily, Ching, Teresa Y. C. and Marnane, Vivienne (2017) The parents’ perspective of the early diagnostic period of their child with hearing loss: information and support. International Journal of Audiology, 1-12. doi:10.1080/14992027.2017.1301683


Author Scarinci, Nerina
Erbasi, Ennur
Moore, Emily
Ching, Teresa Y. C.
Marnane, Vivienne
Title The parents’ perspective of the early diagnostic period of their child with hearing loss: information and support
Journal name International Journal of Audiology   Check publisher's open access policy
ISSN 1708-8186
1499-2027
Publication date 2017-03-23
Sub-type Article (original research)
DOI 10.1080/14992027.2017.1301683
Open Access Status Not yet assessed
Start page 1
End page 12
Total pages 12
Place of publication Abingdon, Oxfordshire, United Kingdom
Publisher Taylor & Francis
Collection year 2018
Language eng
Formatted abstract
Objective: This study aimed to explore the perspectives of caregivers regarding the information and support they received following diagnosis of their child’s hearing loss.

Design: A mixed methods explanatory sequential design was conducted.

Study sample: A total of 445 caregivers of children completed a written survey, and five parents participated in qualitative in-depth interviews.

Results: The most common sources of information for caregivers were discussion with an audiologist, written information, and discussion with a medical professional. Approximately 85% of caregivers reported they were satisfied with the personal/emotional support and information received from service providers. Additional comments from 91 caregivers indicated that 11% experienced a breakdown in information transfer with health professionals. Interviews conducted with five parents from three families revealed two themes which described the diagnostic period as a difficult and emotional experience for parents: (1) support and information provided during diagnosis: what happens first? and (2) accessing early intervention services following a diagnosis of hearing loss: navigating the maze.

Conclusions: The findings of this study give insight into the perspectives of caregivers who have a child diagnosed with hearing loss. The importance of providing timely information and personal/emotional support to caregivers cannot be underestimated.
Keyword Paediatric
Psycho-social/emotional
Cochlear implant
Hearing aids
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: HERDC Pre-Audit
School of Health and Rehabilitation Sciences Publications
 
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Created: Tue, 11 Apr 2017, 00:25:16 EST by Web Cron on behalf of Learning and Research Services (UQ Library)