The unique experience of home for parents and carers of children with disabilities

Aplin, Tammy, Thornton, Heloise and Gustafsson, Louise (2017) The unique experience of home for parents and carers of children with disabilities. Scandinavian Journal of Occupational Therapy, 1-10. doi:10.1080/11038128.2017.1280079


Author Aplin, Tammy
Thornton, Heloise
Gustafsson, Louise
Title The unique experience of home for parents and carers of children with disabilities
Journal name Scandinavian Journal of Occupational Therapy   Check publisher's open access policy
ISSN 1651-2014
1103-8128
Publication date 2017-01-24
Sub-type Article (original research)
DOI 10.1080/11038128.2017.1280079
Open Access Status Not yet assessed
Start page 1
End page 10
Total pages 10
Place of publication Abingdon, Oxfordshire, United Kingdom
Publisher Taylor & Francis
Language eng
Abstract The aim of this paper was to investigate the experience of home for parents and carers of children with disabilities in Australia. Data for this qualitative study were gathered using semi-structured interviews with four families living in their own homes. An inductive thematic analysis revealed two main themes. The first was titled ‘Aspects making everyday life easier’ explored the aspects of the home environment that facilitated home life for the child, including access to transport, services, family and home modifications. The second theme ‘Decisions and efforts to create opportunities for the child’ emphasized the efforts made by parents and carers to promote their child’s independence and participation including a strong consideration for their children’s future needs. The study indicated that the location of home, appropriate home modifications and planning for the future defined the experience of home for parents and carers. These findings identify some important considerations for occupational therapists when providing services in the homes of families with children who have a disability.
Keyword Family
Home adaptation
Home environment
Meaning of home
Occupational therapy
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: HERDC Pre-Audit
School of Health and Rehabilitation Sciences Publications
 
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