Limitations to providing adult cystic fibrosis care in Europe: results of a care centre survey

Madge, Susan, Bell, Scott C., Burgel, Pierre- Régis, De Rijcke, Karleen, Blasi, Francesco and Elborn, J. Stuart (2016) Limitations to providing adult cystic fibrosis care in Europe: results of a care centre survey. Journal of Cystic Fibrosis, 16 1: 85-88. doi:10.1016/j.jcf.2016.07.001


Author Madge, Susan
Bell, Scott C.
Burgel, Pierre- Régis
De Rijcke, Karleen
Blasi, Francesco
Elborn, J. Stuart
Title Limitations to providing adult cystic fibrosis care in Europe: results of a care centre survey
Journal name Journal of Cystic Fibrosis   Check publisher's open access policy
ISSN 1873-5010
1569-1993
Publication date 2016-07-26
Sub-type Letter to editor, brief commentary or brief communication
DOI 10.1016/j.jcf.2016.07.001
Open Access Status Not yet assessed
Volume 16
Issue 1
Start page 85
End page 88
Total pages 4
Place of publication Amsterdam, Netherlands
Publisher Elsevier BV
Language eng
Abstract There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe.

An online survey designed by clinicians and patient representatives to explore level of service.

Training opportunities for clinicians and resources (physical and manpower) to provide care to adults with CF are limited in Europe. Although specific adult CF care has been identified, teams continue to be supported by paediatric colleagues and many adults are still being admitted to paediatric wards. In some centres, service delivery, particularly infection control and access to some CF medication is insufficient and in many places poor personnel resources limits access to comprehensive multidisciplinary teams.

This survey shows an urgent need for the development of resources for adult CF care, in both physical space and appropriately trained clinicians.
Formatted abstract
Background: There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe.

Methods: An online survey designed by clinicians and patient representatives to explore level of service.

Results: Training opportunities for clinicians and resources (physical and manpower) to provide care to adults with CF are limited in Europe. Although specific adult CF care has been identified, teams continue to be supported by paediatric colleagues and many adults are still being admitted to paediatric wards. In some centres, service delivery, particularly infection control and access to some CF medication is insufficient and in many places poor personnel resources limits access to comprehensive multidisciplinary teams.

Conclusions: This survey shows an urgent need for the development of resources for adult CF care, in both physical space and appropriately trained clinicians.
Keyword Adults
Cystic fibrosis
Eastern Europe
Service provision
Western Europe
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Letter to editor, brief commentary or brief communication
Collections: HERDC Pre-Audit
Admin Only - School of Medicine
School of Medicine Publications
 
Versions
Version Filter Type
Citation counts: TR Web of Science Citation Count  Cited 0 times in Thomson Reuters Web of Science Article
Scopus Citation Count Cited 0 times in Scopus Article
Google Scholar Search Google Scholar
Created: Tue, 06 Dec 2016, 14:06:28 EST by System User on behalf of Learning and Research Services (UQ Library)