Are a health advocacy diary and health assessment welcomed by those who use them?

Lennox, N., Rey-Conde, T., Bain, C., Purdie, D. and Bush, R. (2004). Are a health advocacy diary and health assessment welcomed by those who use them?. In: Journal of Intellectual Disability Research. 12th IASSID World Congress, Montpellier, France, (354-354). 14-19 June, 2004. doi:10.1111/j.1365-2788.2004.t01-1-00606.x


Author Lennox, N.
Rey-Conde, T.
Bain, C.
Purdie, D.
Bush, R.
Title of paper Are a health advocacy diary and health assessment welcomed by those who use them?
Conference name 12th IASSID World Congress
Conference location Montpellier, France
Conference dates 14-19 June, 2004
Proceedings title Journal of Intellectual Disability Research   Check publisher's open access policy
Journal name Journal of Intellectual Disability Research   Check publisher's open access policy
Place of Publication Oxford
Publisher Blackwell Scientific
Publication Year 2004
DOI 10.1111/j.1365-2788.2004.t01-1-00606.x
ISSN 0964-2633
Volume 48
Issue 4-5
Start page 354
End page 354
Total pages 1
Language eng
Abstract/Summary Aim: To determine acceptability of a health advocacy intervention, the Ask Diary and the comprehensive health assessment program (CHAP). Method: We performed a two by two designed randomised controlled trial of the Ask Diary and the CHAP tool in  adults with intellectual disability. Results of interviews of self-advocates and caregiver advocates, both families and paid carers, will be presented. Results: The interviews found strong support for the Ask Diary and the CHAP tool among selfadvocates and family caregivers. There was clear indication that the Ask Diary improved advocacy, aided in the organisation of health matters and was easy to use. It was reported that the health assessment resulted in benefits for the person’s health and high acceptability by carers. There was less support for the interventions where the person was supported through government services. Conclusions: Self-advocates and family caregivers welcome and use a personalised health advocacy diary and also a health assessment. However paid carers used the diary less but were supportive of the health assessment.
Subjects 11 Medical and Health Sciences
Keyword Genetics & Heredity
Clinical Neurology
Psychiatry
Education, Special
Rehabilitation
Q-Index Code EX
Q-Index Status Provisional Code
Institutional Status Unknown

 
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Created: Tue, 14 Aug 2007, 00:20:19 EST