eRegistries: indicators for the WHO Essential Interventions for reproductive, maternal, newborn and child health

Flenady, Vicki, Wojcieszek, Aleena M., Fjeldheim, Ingvild, Friberg, Ingrid K., Nankabirwa, Victoria, Jani, Jagrati V., Myhre, Sonja, Middleton, Philippa, Crowther, Caroline, Ellwood, David, Tudehope, David, Pattinson, Robert, Ho, Jacqueline, Matthews, Jiji, Ortega, Aurora Bermudez, Venkateswaran, Mahima, Chou, Doris, Say, Lale, Mehl, Garret and Froen, J. Frederik (2016) eRegistries: indicators for the WHO Essential Interventions for reproductive, maternal, newborn and child health. BMC Pregnancy and Childbirth, 16 1: 293. doi:10.1186/s12884-016-1049-y


Author Flenady, Vicki
Wojcieszek, Aleena M.
Fjeldheim, Ingvild
Friberg, Ingrid K.
Nankabirwa, Victoria
Jani, Jagrati V.
Myhre, Sonja
Middleton, Philippa
Crowther, Caroline
Ellwood, David
Tudehope, David
Pattinson, Robert
Ho, Jacqueline
Matthews, Jiji
Ortega, Aurora Bermudez
Venkateswaran, Mahima
Chou, Doris
Say, Lale
Mehl, Garret
Froen, J. Frederik
Title eRegistries: indicators for the WHO Essential Interventions for reproductive, maternal, newborn and child health
Journal name BMC Pregnancy and Childbirth   Check publisher's open access policy
ISSN 1471-2393
Publication date 2016-09-01
Sub-type Article (original research)
DOI 10.1186/s12884-016-1049-y
Open Access Status DOI
Volume 16
Issue 1
Start page 293
Total pages 14
Place of publication London, United Kingdom
Publisher BioMed Central
Language eng
Abstract Electronic health registries - eRegistries - can systematically collect relevant information at the point of care for reproductive, maternal, newborn and child health (RMNCH). However, a suite of process and outcome indicators is needed for RMNCH to monitor care and to ensure comparability between settings. Here we report on the assessment of current global indicators and the development of a suite of indicators for the WHO Essential Interventions for use at various levels of health care systems nationally and globally.

Currently available indicators from both household and facility surveys were collated through publicly available global databases and respective survey instruments. We then developed a suite of potential indicators and associated data points for the 45 WHO Essential Interventions spanning preconception to newborn care. Four types of performance indicators were identified (where applicable): process (i.e. coverage) and outcome (i.e. impact) indicators for both screening and treatment/prevention. Indicators were evaluated by an international expert panel against the eRegistries indicator evaluation criteria and further refined based on feedback by the eRegistries technical team.

Of the 45 WHO Essential Interventions, only 16 were addressed in any of the household survey data available. A set of 216 potential indicators was developed. These indicators were generally evaluated favourably by the panel, but difficulties in data ascertainment, including for outcome measures of cause-specific morbidity and mortality, were frequently reported as barriers to the feasibility of indicators. Indicators were refined based on feedback, culminating in the final list of 193 total unique indicators: 93 for preconception and antenatal care; 53 for childbirth and postpartum care; and 47 for newborn and small and ill baby care.

Large gaps exist in the availability of information currently collected to support the implementation of the WHO Essential Interventions. The development of this suite of indicators can be used to support the implementation of eRegistries and other data platforms, to ensure that data are utilised to support evidence-based practice, facilitate measurement and accountability, and improve maternal and child health outcomes.
Formatted abstract
Background
Electronic health registries – eRegistries - can systematically collect relevant information at the point of care for reproductive, maternal, newborn and child health (RMNCH). However, a suite of process and outcome indicators is needed for RMNCH to monitor care and to ensure comparability between settings. Here we report on the assessment of current global indicators and the development of a suite of indicators for the WHO Essential Interventions for use at various levels of health care systems nationally and globally.

Methods
Currently available indicators from both household and facility surveys were collated through publicly available global databases and respective survey instruments. We then developed a suite of potential indicators and associated data points for the 45 WHO Essential Interventions spanning preconception to newborn care. Four types of performance indicators were identified (where applicable): process (i.e. coverage) and outcome (i.e. impact) indicators for both screening and treatment/prevention. Indicators were evaluated by an international expert panel against the eRegistries indicator evaluation criteria and further refined based on feedback by the eRegistries technical team.

Results
Of the 45 WHO Essential Interventions, only 16 were addressed in any of the household survey data available. A set of 216 potential indicators was developed. These indicators were generally evaluated favourably by the panel, but difficulties in data ascertainment, including for outcome measures of cause-specific morbidity and mortality, were frequently reported as barriers to the feasibility of indicators. Indicators were refined based on feedback, culminating in the final list of 193 total unique indicators: 93 for preconception and antenatal care; 53 for childbirth and postpartum care; and 47 for newborn and small and ill baby care.

Conclusions
Large gaps exist in the availability of information currently collected to support the implementation of the WHO Essential Interventions. The development of this suite of indicators can be used to support the implementation of eRegistries and other data platforms, to ensure that data are utilised to support evidence-based practice, facilitate measurement and accountability, and improve maternal and child health outcomes.
Keyword Performance indicators
Process indicators
Outcome indicators
Intervention coverage
ehealth
Registries
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ
Additional Notes Article number 293

Document type: Journal Article
Sub-type: Article (original research)
Collections: Mater Research Institute-UQ (MRI-UQ)
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Created: Sat, 29 Oct 2016, 00:47:21 EST by Mr Mathew Carter on behalf of Learning and Research Services (UQ Library)