Carers’ burden and adjustment to HIV

Pakenham K.I., Dadds M.R. and Terry D.J. (1995) Carers’ burden and adjustment to HIV. AIDS Care, 7 2: 189-204. doi:10.1080/09540129550126704

Author Pakenham K.I.
Dadds M.R.
Terry D.J.
Title Carers’ burden and adjustment to HIV
Journal name AIDS Care   Check publisher's open access policy
ISSN 1360-0451
Publication date 1995-04-01
Year available 1995
Sub-type Article (original research)
DOI 10.1080/09540129550126704
Open Access Status Not yet assessed
Volume 7
Issue 2
Start page 189
End page 204
Total pages 16
Place of publication ABINGDON
Language eng
Subject 2739 Public Health, Environmental and Occupational Health
3306 Health (social science)
3207 Social Psychology
3301 Social Sciences (miscellaneous)
3600 Health Professions
Abstract Empirical evidence from well designed studies into the effects on carers of caring for a person with HIV is lacking. This study investigated the correlates of carers’ burden and adjustment to their caring for a person with HIV. Thirty-four carers and their HIV-infected patients were interviewed and completed self-administered scales. Measures included two psychosocial adjustment indices, a Problem Checklist (burden) and two patient health status indices. The most common elements of carer’s burden were distressing emotions, relationship difficulties, somatic symptoms, and grief. Demographic variables, patient’s HIV stage, nature of caregiving relationship and duration of caregiving were unrelated to carers’ burden or adjustment. However, living arrangement was found to be significantly associated with carers’ burden, with those carers co-residing experiencing more burden than those living apart from the patient. Carers’ coping strategies were only weakly related to carer’s adjustment and burden. The patients’ emotional and existential concerns were strongly positively related to carers’ burden and all domains of adjustment, while patients’ instrumental concerns and measures of patients’ health status were positively related to carers’ burden. As predicted, patients had significantly poorer levels of adjustment than carers. The findings supported the use of a reciprocal determinism approach for understanding the relationship between the patient and carer and adjustment outcomes.
Keyword Spouse Caregivers
Chronic Illness
Mediating Role
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Unknown

Document type: Journal Article
Sub-type: Article (original research)
Collection: Scopus Import - Archived
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Citation counts: TR Web of Science Citation Count  Cited 37 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 43 times in Scopus Article | Citations
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