Active therapy and models of care for adolescents and young adults with cancer

Ramphal, Raveena, Meyer, Ralph, Schacter, Brent, Rogers, Paul and Pinkerton, Ross (2011) Active therapy and models of care for adolescents and young adults with cancer. Cancer, 117 S10: 2316-2322. doi:10.1002/cncr.26048

Author Ramphal, Raveena
Meyer, Ralph
Schacter, Brent
Rogers, Paul
Pinkerton, Ross
Title Active therapy and models of care for adolescents and young adults with cancer
Journal name Cancer   Check publisher's open access policy
ISSN 0008-543X
Publication date 2011-05-15
Year available 2011
Sub-type Article (original research)
DOI 10.1002/cncr.26048
Open Access Status Not yet assessed
Volume 117
Issue S10
Start page 2316
End page 2322
Total pages 7
Place of publication Hoboken, NJ United States
Publisher John Wiley & Sons
Language eng
Abstract The reduction in the cancer mortality rate in adolescents and young adults (AYA) with cancer has lagged behind the reduction noted in children and older adults. Studies investigating reasons for this are limited but causes appear to be multifactorial. Host factors such as developmental stage, compliance, and tolerance to therapy; provider factors such as lack of awareness of cancer in AYA and referral patterns; differences in disease biology and treatment strategies; low accrual onto clinical trials; and lack of psychosocial support and education programs for AYA all likely play a role. Recommendations for change from a recent international workshop include education of physicians and patients concerning AYA cancer, improved cooperation between pediatric and adult centers, age-appropriate psychosocial support services, programs to help AYA with issues relevant to them, dedicated AYA hospital space, improved accrual to clinical trials, the use of technology to educate patients and enhance communication between patients and the health care team, and ensuring that resident and fellowship training programs provide adequate education in AYA oncology. The longer term goal is to develop AYA oncology into a distinct subspecialist discipline within oncology. The ideal model of care would incorporate medical care, psychosocial support services, and a physical environment that are age-appropriate. When this is not feasible, the development of "virtual units" connecting patients to the health care team or a combination of physical and virtual models are alternative options. The assessment of outcome measures is necessary to determine whether the interventions implemented result in improved survival and better quality of life, and are cost-effective.
Keyword Adolescents
Health care delivery
Oncology service
Young adults
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Non-UQ

Document type: Journal Article
Sub-type: Article (original research)
Collection: School of Medicine Publications
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Citation counts: TR Web of Science Citation Count  Cited 31 times in Thomson Reuters Web of Science Article | Citations
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