Opinions of families, staff, and patients about family participation in care in intensive care units

Garrouste-Orgeas, Maite, Willems, Vincent, Timsit, Jean-Francois, Diaw, Frederique, Brochon, Sandie, Vesin, Aurelien, Philippart, Francois, Tabah, Alexis, Coquet, Isaline, Bruel, Cedric, Moulard, Marie-Luce, Carlet, Jean and Misset, Benoit (2010) Opinions of families, staff, and patients about family participation in care in intensive care units. Journal of Critical Care, 25 4: 634-640. doi:10.1016/j.jcrc.2010.03.001

Author Garrouste-Orgeas, Maite
Willems, Vincent
Timsit, Jean-Francois
Diaw, Frederique
Brochon, Sandie
Vesin, Aurelien
Philippart, Francois
Tabah, Alexis
Coquet, Isaline
Bruel, Cedric
Moulard, Marie-Luce
Carlet, Jean
Misset, Benoit
Title Opinions of families, staff, and patients about family participation in care in intensive care units
Journal name Journal of Critical Care   Check publisher's open access policy
ISSN 0883-9441
Publication date 2010-12-01
Sub-type Article (original research)
DOI 10.1016/j.jcrc.2010.03.001
Open Access Status Not yet assessed
Volume 25
Issue 4
Start page 634
End page 640
Total pages 7
Place of publication Maryland Heights, MO, United States
Publisher W.B. Saunders
Language eng
Formatted abstract
Purpose: The aims of the study were to assess opinions of caregivers, families, and patients about involvement of families in the care of intensive care unit (ICU) patients; to evaluate the prevalence of symptoms of anxiety and depression in family members; and to measure family satisfaction with care.

Materials and Methods: Between days 3 and 5, perceptions by families and ICU staff of family involvement in care were collected prospectively at a single center. Family members completed the Hospital Anxiety and Depression Scale (HADS) and a satisfaction scale (Critical Care Family Needs Inventory). Nurses recorded care provided spontaneously by families. Characteristics of patient-relative pairs (n = 101) and ICU staff (n = 45) were collected. Patients described their perceptions of family participation in care during a telephone interview, 206 ± 147 days after hospital discharge.

Results: The numbers of patient-relative pairs for whom ICU staff reported favorable perceptions were 101 (100%) of 101 for physicians, 91 (90%) for nurses, and 95 (94%) for nursing assistants. Only 4 (3.9%) of 101 families refused participation in care. Only 14 (13.8%) of 101 families provided care spontaneously. The HADS score showed symptoms of anxiety in 58 (58.5%) of 99 and of depression in 26 (26.2%) of 99 family members. The satisfaction score was high (11.0 ± 1.25). Among patients, 34 (77.2%) of 44 had a favorable perception of family participation in care.

Conclusions: Families and ICU staff were very supportive of family participation in care. Most patients were also favorable to care by family members.
Keyword Critical care
Family nursing
Family relations
Family-centered care
Intensive care unit
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Non-UQ

Document type: Journal Article
Sub-type: Article (original research)
Collection: School of Medicine Publications
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