Development and piloting of a brain tumour-specific question prompt list

Langbecker, D., Janda, M. and Yates, P. (2012) Development and piloting of a brain tumour-specific question prompt list. European Journal of Cancer Care, 21 4: 517-526. doi:10.1111/j.1365-2354.2012.01328.x

Author Langbecker, D.
Janda, M.
Yates, P.
Title Development and piloting of a brain tumour-specific question prompt list
Journal name European Journal of Cancer Care   Check publisher's open access policy
ISSN 0961-5423
Publication date 2012-07-01
Year available 2012
Sub-type Article (original research)
DOI 10.1111/j.1365-2354.2012.01328.x
Open Access Status Not Open Access
Volume 21
Issue 4
Start page 517
End page 526
Total pages 10
Place of publication Chichester, West Sussex, United Kingdom
Publisher Wiley-Blackwell Publishing
Language eng
Abstract The objective of this research was to develop a question prompt list aimed at increasing question asking and reducing the unmet information needs of adults with primary brain tumours, and to pilot the question prompt list to determine its suitability for the intended population. Thematic analysis of existing resources was used to create a draft which was refined via interviews with 12 brain tumour patients and six relatives, readability testing and review by health professionals. A non-randomised before-after pilot study with 20 brain tumour patients was used to assess the acceptability and usefulness of the question prompt list, compared with a 'standard brochure', and the feasibility of evaluation strategies. The question prompt list developed covered seven main topics (diagnosis, prognosis, symptoms and changes, treatment, support, after treatment finishes and the health professional team). Pilot study participants provided with the question prompt list agreed that it was helpful (7/7), contained questions that were useful to them (7/7) and prompted them to ask their medical oncologist questions (5/7). The question prompt list is acceptable to patients and contains questions relevant to them. Research is now needed to assess its effectiveness in increasing question asking and reducing unmet information needs.
Keyword Adults
Brain tumours
Patient information
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Non-UQ

Document type: Journal Article
Sub-type: Article (original research)
Collection: School of Medicine Publications
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Citation counts: TR Web of Science Citation Count  Cited 17 times in Thomson Reuters Web of Science Article | Citations
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Created: Tue, 07 Jun 2016, 22:08:10 EST by Danette Langbecker on behalf of Learning and Research Services (UQ Library)