Barriers and Facilitators for Participation in People with Parkinson’s Disease

Nilsson, Maria H., Iwarsson, Susanne, Thordardottir, Björg and Haak, Maria (2015) Barriers and Facilitators for Participation in People with Parkinson’s Disease. Journal of Parkinson's Disease, 5 4: 983-992. doi:10.3233/JPD-150631

Author Nilsson, Maria H.
Iwarsson, Susanne
Thordardottir, Björg
Haak, Maria
Title Barriers and Facilitators for Participation in People with Parkinson’s Disease
Journal name Journal of Parkinson's Disease   Check publisher's open access policy
ISSN 1877-7171
Publication date 2015-11-21
Year available 2015
Sub-type Article (original research)
DOI 10.3233/JPD-150631
Open Access Status Not Open Access
Volume 5
Issue 4
Start page 983
End page 992
Total pages 10
Place of publication Amsterdam, Netherlands
Publisher I O S Press
Language eng
Formatted abstract
Background: Activity performance is marked by the degenerative nature of Parkinson’s disease (PD), but few qualitative studies have focused on how people with PD perceive participation in life situations.
Objective: To identify and describe barriers and facilitators for participation from the perspective of people with PD.
Methods: Qualitative data was obtained by the focus group method using a semi-structured interview guide. Participants were recruited by purposeful sampling until saturation was reached. Homogeneity within each focus group was based on self-rated PD severity (mild, moderate, severe). Nine focus groups (three per PD severity level) included a total of 29 participants.
Results: Complex dynamics between the individual and the physical and social environment create barriers and facilitators for participation as described in the four categories which emerged out of the focus group discussions. The category Ambiguity of attitudes and the support of others describes how attitudes and support of other people act both as facilitators and barriersfor participation. PD specific complexity of the body and physical environment interaction describes barriers for participation. Facilitators emerged in the two categories PD expertise in health care and social services and Information and education foster PD specific understanding.
Conclusions: Our findings imply several potential means to facilitate participation for people with PD, taking the person as
well as the environment into account in person-centred interventions. This involves aspects such as having access to PD specific expertise, increasing the knowledge and thereby the understanding of PD as well as providing support for maintained work-life.
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Non-UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Non HERDC
School of Nursing, Midwifery and Social Work Publications
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Citation counts: TR Web of Science Citation Count  Cited 5 times in Thomson Reuters Web of Science Article | Citations
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Created: Wed, 02 Dec 2015, 19:15:36 EST by Vicki Percival on behalf of School of Nursing, Midwifery and Social Work