Measuring the impact of burn scarring on health-related quality of life: development and preliminary content validation of the Brisbane Burn Scar Impact Profile (BBSIP) for children and adults

Tyack, Zephanie, Ziviani, Jenny, Kimble, Roy, Plaza, Anita, Jones, Amber, Cuttle, Leila and Simons, Megan (2015) Measuring the impact of burn scarring on health-related quality of life: development and preliminary content validation of the Brisbane Burn Scar Impact Profile (BBSIP) for children and adults. Burns, 41 7: 1405-1419. doi:10.1016/j.burns.2015.05.021


Author Tyack, Zephanie
Ziviani, Jenny
Kimble, Roy
Plaza, Anita
Jones, Amber
Cuttle, Leila
Simons, Megan
Title Measuring the impact of burn scarring on health-related quality of life: development and preliminary content validation of the Brisbane Burn Scar Impact Profile (BBSIP) for children and adults
Journal name Burns   Check publisher's open access policy
ISSN 1879-1409
0305-4179
Publication date 2015-11-01
Year available 2015
Sub-type Article (original research)
DOI 10.1016/j.burns.2015.05.021
Open Access Status Not Open Access
Volume 41
Issue 7
Start page 1405
End page 1419
Total pages 15
Place of publication Kidlington, Oxford United Kingdom
Publisher Pergamon Press
Language eng
Subject 2746 Surgery
2711 Emergency Medicine
2706 Critical Care and Intensive Care Medicine
Abstract Introduction No burn-scar specific, health-related quality of life (HRQOL) measure exists. This study aimed to develop a patient-reported, evaluative HRQOL measure to assess the impact of burn scarring in children and adults. Method Semi-structured interviews, content validation surveys, and cognitive interviews were used to develop and test content validity of a new measure - the Brisbane Burn Scar Impact Profile (BBSIP). Results Participants comprised Australian adults (n = 23) and children (n = 19) with burn scarring; caregivers of children with burn scarring (n = 28); and international scar management experts (n = 14). Items distinct from other burn scar measures emerged. Four versions of the BBSIP were developed; one for children aged 8-18 years, one for adults, one for caregivers (as proxies for children aged less than 8-years), and one for caregivers of children aged 8-18 years. Preliminary content validity of the BBSIP was supported. Final items covered physical and sensory symptoms; emotional reactions; impact on social functioning and daily activities; impact of treatment; and environmental factors. Conclusion The BBSIP was developed to assess burn-scar specific HRQOL and will be available at http://www.coolburns.com.au under a creative commons license. Further testing is underway.
Formatted abstract
Introduction

No burn-scar specific, health-related quality of life (HRQOL) measure exists. This study aimed to develop a patient-reported, evaluative HRQOL measure to assess the impact of burn scarring in children and adults.

Method

Semi-structured interviews, content validation surveys, and cognitive interviews were used to develop and test content validity of a new measure – the Brisbane Burn Scar Impact Profile (BBSIP).

Results

Participants comprised Australian adults (n = 23) and children (n = 19) with burn scarring; caregivers of children with burn scarring (n = 28); and international scar management experts (n = 14). Items distinct from other burn scar measures emerged. Four versions of the BBSIP were developed; one for children aged 8–18 years, one for adults, one for caregivers (as proxies for children aged less than 8-years), and one for caregivers of children aged 8–18 years. Preliminary content validity of the BBSIP was supported. Final items covered physical and sensory symptoms; emotional reactions; impact on social functioning and daily activities; impact of treatment; and environmental factors.

Conclusion

The BBSIP was developed to assess burn-scar specific HRQOL and will be available at http://www.coolburns.com.au under a creative commons license. Further testing is underway.
Keyword Cicatrix
Hypertrophic
Outcome assessment
Quality of life
Patient reported outcomes
Health and wellbeing
Burns
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2016 Collection
School of Health and Rehabilitation Sciences Publications
School of Medicine Publications
 
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Citation counts: TR Web of Science Citation Count  Cited 11 times in Thomson Reuters Web of Science Article | Citations
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