Mobile Phones in Research and Treatment: Ethical Guidelines and Future Directions

Carter, Adrian, Liddle, Jacki, Hall, Wayne and Chenery, Helen (2015) Mobile Phones in Research and Treatment: Ethical Guidelines and Future Directions. JMIR mhealth and uhealth, 3 4: . doi:10.2196/mhealth.4538


Author Carter, Adrian
Liddle, Jacki
Hall, Wayne
Chenery, Helen
Title Mobile Phones in Research and Treatment: Ethical Guidelines and Future Directions
Journal name JMIR mhealth and uhealth   Check publisher's open access policy
ISSN 2291-5222
Publication date 2015-10-16
Year available 2015
Sub-type Article (original research)
DOI 10.2196/mhealth.4538
Open Access Status DOI
Volume 3
Issue 4
Total pages 8
Place of publication Toronto, ON, Canada
Publisher JMIR Publications
Language eng
Abstract Mobile phones and other remote monitoring devices, collectively referred to as "mHealth," promise to transform the treatment of a range of conditions, including movement disorders, such as Parkinson’s disease. In this viewpoint paper, we use Parkinson’s disease as an example, although most considerations discussed below are valid for a wide variety of conditions. The ability to easily collect vast arrays of personal data over long periods will give clinicians and researchers unique insights into disease treatment and progression. These capabilities also pose new ethical challenges that health care professionals will need to manage if this promise is to be realized with minimal risk of harm. These challenges include privacy protection when anonymity is not always possible, minimization of third-party uses of mHealth data, informing patients of complex risks when obtaining consent, managing data in ways that maximize benefit while minimizing the potential for disclosure to third parties, careful communication of clinically relevant information gleaned via mHealth technologies, and rigorous evaluation and regulation of mHealth products before widespread use. Given the complex array of symptoms and differences in comfort and literacy with technology, it is likely that these solutions will need to be individualized. It is therefore critical that developers of mHealth apps engage with patients throughout the development process to ensure that the technology meets their needs. These challenges will be best met through early and ongoing engagement with patients and other relevant stakeholders.
Keyword Ethics
Informed consent
mHealth
Mobile phones
Parkinsons Disease
Privacy
Regulation
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: UQ Centre for Clinical Research Publications
Official 2016 Collection
Centre for Youth Substance Abuse Research Publications
 
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Created: Wed, 18 Nov 2015, 21:23:34 EST by Dr Jacki Liddle on behalf of UQ Centre for Clinical Research