Multiple perspectives on quality of life for residents with dementia in long term care facilities: protocol for a comprehensive Australian study

Beattie, Elizabeth, O’Reilly, Maria, Moyle, Wendy, Chenowetha, Lynn, Fetherstonhaugh, Deirdre, Horner, Barbara, Robinson, Andrew and Fielding, Elaine (2015) Multiple perspectives on quality of life for residents with dementia in long term care facilities: protocol for a comprehensive Australian study. International Psychogeriatrics, 27 10: 1739-1747. doi:10.1017/S1041610215000435

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Author Beattie, Elizabeth
O’Reilly, Maria
Moyle, Wendy
Chenowetha, Lynn
Fetherstonhaugh, Deirdre
Horner, Barbara
Robinson, Andrew
Fielding, Elaine
Title Multiple perspectives on quality of life for residents with dementia in long term care facilities: protocol for a comprehensive Australian study
Journal name International Psychogeriatrics   Check publisher's open access policy
ISSN 1041-6102
1741-203X
Publication date 2015-10-01
Year available 2015
Sub-type Article (original research)
DOI 10.1017/S1041610215000435
Open Access Status Not Open Access
Volume 27
Issue 10
Start page 1739
End page 1747
Total pages 9
Place of publication Cambridge, United Kingdom
Publisher Cambridge University Press
Language eng
Formatted abstract
Background: Dementia is a chronic illness without cure or effective treatment, which results in declining mental and physical function and assistance from others to manage activities of daily living. Many people with dementia live in long term care facilities, yet research into their quality of life (QoL) was rare until the last decade. Previous studies failed to incorporate important variables related to the facility and care provision or to look closely at the daily lives of residents. This paper presents a protocol for a comprehensive, multi-perspective assessment of QoL of residents with dementia living in long term care in Australia. A secondary aim is investigating the effectiveness of self-report instruments for measuring QoL.

Methods: The study utilizes a descriptive, mixed methods design to examine how facility, care staff, and resident factors impact QoL. Over 500 residents with dementia from a stratified, random sample of 53 facilities are being recruited. A sub-sample of 12 residents is also taking part in qualitative interviews and observations.

Conclusions: This national study will provide a broad understanding of factors underlying QoL for residents with dementia in long term care. The present study uses a similar methodology to the US-based Collaborative Studies of Long Term Care (CS-LTC) Dementia Care Study, applying it to the Australian setting.
Keyword Dementia
Quality of Life (QoL)
Long term care
Residential facilities
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2016 Collection
School of Nursing, Midwifery and Social Work Publications
 
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Created: Fri, 09 Oct 2015, 00:29:04 EST by Vicki Percival on behalf of School of Nursing, Midwifery and Social Work