A randomized trial of a breast/ovarian cancer genetic testing decision aid used as a communication aid during genetic counseling

Wakefield, Claire F., Meiser, Bettina, Homewood, Judi, Taylor, Alan, Gleeson, Margaret, Williams, Rachel, Tucker, Kathy, AGenDA Collaborative Group and Ward, Robyn (2008) A randomized trial of a breast/ovarian cancer genetic testing decision aid used as a communication aid during genetic counseling. Psycho-Oncology, 17 8: 844-854. doi:10.1002/pon.1353


Author Wakefield, Claire F.
Meiser, Bettina
Homewood, Judi
Taylor, Alan
Gleeson, Margaret
Williams, Rachel
Tucker, Kathy
AGenDA Collaborative Group
Ward, Robyn
Title A randomized trial of a breast/ovarian cancer genetic testing decision aid used as a communication aid during genetic counseling
Journal name Psycho-Oncology   Check publisher's open access policy
ISSN 1057-9249
1099-1611
Publication date 2008-08-01
Year available 2008
Sub-type Article (original research)
DOI 10.1002/pon.1353
Volume 17
Issue 8
Start page 844
End page 854
Total pages 11
Place of publication West Sussex, United Kingdom
Publisher John Wiley & Sons
Language eng
Formatted abstract
Objectives: To evaluate the impact of a decision aid for women considering genetic testing for breast/ovarian cancer risk given during genetic counseling.

Methods: One hundred and forty-eight women were randomized to receive the decision aid or a control pamphlet at the beginning of their first consultation with a genetic counselor. When the patient received the decision aid, it was used to complement consultation discussions about genetic testing. One hundred and ten (74.3%) women completed the first questionnaire designed to elicit information about women's levels of decisional conflict and knowledge about genetic testing. Of these, 105 (70.9%) completed a second questionnaire to assess longer-term outcomes, 6 months postconsultation.

Results: Results showed that women who received the decision aid felt more informed about genetic testing (χ2(1) = 8.69; P = 0.003), had clearer values (χ2(1) = 6.90; P = 0.009) and had higher knowledge levels (χ2(2) = 6.49; P = 0.039) than women who received the control pamphlet.

Conclusions: The developed decision aid improved patient outcomes better than a control pamphlet when implemented during genetic counseling and given to the patient to take home.
Keyword Cancer
Decision aid
Genetic testing
Hereditary breast/ovarian cancer
Implementation
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Non-UQ

Document type: Journal Article
Sub-type: Article (original research)
Collection: Office of the Vice-Chancellor
 
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Created: Wed, 11 Feb 2015, 20:28:54 EST by Ms Kate Rowe on behalf of Office of Deputy Vice-Chancellor (Research)