Constantly changing lives: experiences of people with multiple sclerosis

Lexell, Eva Månsso, Lund, Maria Larsson and Iwarsson, Susanne (2009) Constantly changing lives: experiences of people with multiple sclerosis. American Journal of Occupational Therapy, 63 6: 772-781. doi:10.5014/ajot.63.6.772

Author Lexell, Eva Månsso
Lund, Maria Larsson
Iwarsson, Susanne
Title Constantly changing lives: experiences of people with multiple sclerosis
Journal name American Journal of Occupational Therapy   Check publisher's open access policy
ISSN 0272-9490
Publication date 2009-11-01
Sub-type Article (original research)
DOI 10.5014/ajot.63.6.772
Open Access Status Not Open Access
Volume 63
Issue 6
Start page 772
End page 781
Total pages 10
Place of publication Bethesda, MD, United States
Publisher American Occupational Therapy Association
Language eng
Abstract The purpose of this study was to gain an enhanced understanding of how people with multiple sclerosis (MS) experience their engagement in occupations. We interviewed 10 people and then analyzed the data gathered using the constant comparative method of grounded theory. The findings encompassed the core category "essentials of a constantly changing life," showing that along a continuum of change, the participants experienced a decreasing engagement in occupations that forced them to continuously struggle to maintain engagement. This struggle changed them and required them to construct a different life than before. Our findings suggest that professionals working in MS rehabilitation need to broaden their repertoire of interventions relevant to conditions in clients' social environment, with the intention of influencing those occupations that are individually most meaningful. Occupational therapists should focus on the client's engagement in occupations and its consequences for the client's life and self-identity.
Keyword Human activities
Identification (psychology)
Life change events
Multiple sclerosis
Social environment
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Non-UQ
Additional Notes Link to Journal Article:

Document type: Journal Article
Sub-type: Article (original research)
Collection: School of Nursing, Midwifery and Social Work Publications
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Citation counts: Scopus Citation Count Cited 13 times in Scopus Article | Citations
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Created: Sat, 05 Jul 2014, 00:04:30 EST by Vicki Percival on behalf of School of Nursing, Midwifery and Social Work