Health conditions and their impact among adolescents and young adults with down syndrome

Pikora, Terri J., Bourke, Jenny, Bathgate, Katherine, Foley, Kitty-Rose, Lennox, Nicholas and Leonard, Helen (2014) Health conditions and their impact among adolescents and young adults with down syndrome. PLoS ONE, 9 5: . doi:10.1371/journal.pone.0096868

Author Pikora, Terri J.
Bourke, Jenny
Bathgate, Katherine
Foley, Kitty-Rose
Lennox, Nicholas
Leonard, Helen
Title Health conditions and their impact among adolescents and young adults with down syndrome
Journal name PLoS ONE   Check publisher's open access policy
ISSN 1932-6203
Publication date 2014-05-01
Year available 2014
Sub-type Article (original research)
DOI 10.1371/journal.pone.0096868
Open Access Status DOI
Volume 9
Issue 5
Total pages 8
Place of publication San Francisco, CA, United States
Publisher Public Library of Science
Language eng
Formatted abstract
Objective: To examine the prevalence of medical conditions and use of health services among young adults with Down
syndrome and describe the impact of these conditions upon their lives.

Methods: Using questionnaire data collected in 2011 from parents of young adults with Down syndrome we investigated
the medical conditions experienced by their children in the previous 12 months. Univariate, linear and logistic regression
analyses were performed.

Results: We found that in addition to the conditions commonly experienced by children with Down syndrome, including
eye and vision problems (affecting 73%), ear and hearing problems (affecting 45%), cardiac (affecting 25%) and respiratory
problems (affecting 36%), conditions also found to be prevalent within our young adult cohort included musculoskeletal
conditions (affecting 61%), body weight (affecting 57%), skin (affecting 56%) and mental health (affecting 32%) conditions
and among young women menstrual conditions (affecting 58%). Few parents reported that these conditions had no impact,
with common impacts related to restrictions in opportunities to participate in employment and community leisure activities
for the young people, as well as safety concerns.

Conclusion: There is the need to monitor, screen and provide appropriate strategies such as through the promotion of
healthy lifestyles to prevent the development of comorbidities in young people with Down syndrome and, where present,
to reduce their impact.
Keyword Down syndrome
Young adults
Health-related problems
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Article ID e96868

Document type: Journal Article
Sub-type: Article (original research)
Collections: Mater Research Institute-UQ (MRI-UQ)
Official 2015 Collection
Version Filter Type
Citation counts: TR Web of Science Citation Count  Cited 5 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 5 times in Scopus Article | Citations
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Created: Tue, 17 Jun 2014, 10:41:56 EST by System User on behalf of Queensland Centre for Intellectual and Developmental Disability