Perspectives of paediatric and adult gastroenterologists on transfer and transition care of adolescents with inflammatory bowel disease

Wright, E. K., Williams, J., Andrews, J. M., Day, A. S., Gearry, R. B., Bampton, P., Moore, D., Lemberg, D., Ravikumaran, R., Wilson, J., Lewindon, P., Radford-Smith, G., Rosenbaum, J., Catto-Smith, A., Desmond, P. V., Connell, W. R., Cameron, D., Alex, G., Bell, S. J. and De Cruz, P. (2014) Perspectives of paediatric and adult gastroenterologists on transfer and transition care of adolescents with inflammatory bowel disease. Internal Medicine Journal, 44 5: 490-496. doi:10.1111/imj.12402


Author Wright, E. K.
Williams, J.
Andrews, J. M.
Day, A. S.
Gearry, R. B.
Bampton, P.
Moore, D.
Lemberg, D.
Ravikumaran, R.
Wilson, J.
Lewindon, P.
Radford-Smith, G.
Rosenbaum, J.
Catto-Smith, A.
Desmond, P. V.
Connell, W. R.
Cameron, D.
Alex, G.
Bell, S. J.
De Cruz, P.
Title Perspectives of paediatric and adult gastroenterologists on transfer and transition care of adolescents with inflammatory bowel disease
Journal name Internal Medicine Journal   Check publisher's open access policy
ISSN 1445-5994
1444-0903
Publication date 2014-05-01
Year available 2014
Sub-type Article (original research)
DOI 10.1111/imj.12402
Open Access Status
Volume 44
Issue 5
Start page 490
End page 496
Total pages 7
Place of publication Richmond, VIC, Australia
Publisher Wiley-Blackwell Publishing Asia
Language eng
Formatted abstract
Background: Programmes specific to inflammatory bowel disease (IBD) that facilitate transition from paediatric to adult care are currently lacking.
Aim: We aimed to explore the perceived needs of adolescents with IBD among paediatric and adult gastroenterologists and to identify barriers to effective transition.
Methods: A web-based survey of paediatric and adult gastroenterologists in Australia and New Zealand employed both ranked items (Likert scale; from 1 not important to 5 very important) and forced choice items regarding the importance of various factors in faciitating effective transition of adolescents from paediatric to adult care.
Results: Response rate among 178 clinicians was 41%. Only 23% of respondents felt that adolescents with IBD were adequately prepared for transition to adult care. Psychological maturity (Mean = 4.3, standard deviation (SD) = 0.70) and readiness as assessed by adult caregiver (Mean = 4, SD = 0.72) were prioritised as the most important factors in determining timing of transfer. Self-efficacy and readiness as assessed by adult caregiver were considered the two most important factors to determine timing of transition by both groups of gastroenterologists. Poor medical and surgical handover (Mean = 4.10, SD = 0.8) and patients' lack of responsibility for their own care (Mean= 4.10, SD = 0.82) were perceived as major barriers to successful transition by both paediatric and adult gastroenterologists.
Conclusions: Deficiencies exist in current transition care of adolescents with IBD in Australia and New Zealand. Standardising transition care practices with strategies aimed at optimising communication, patient education, self-efficacy and adherence may improve outcomes.
Keyword Transfer
Transition
Adolescent
Inflammatory bowel disease
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2015 Collection
School of Medicine Publications
 
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