Survivors' experiences of dysphagia-related services following head and neck cancer: implications for clinical practice

Nund, Rebecca L., Ward, Elizabeth C., Scarinci, Nerina A., Cartmill, Bena, Kuipers, Pim and Porceddu, Sandro V. (2014) Survivors' experiences of dysphagia-related services following head and neck cancer: implications for clinical practice. International Journal of Language and Communication Disorders, 49 3: 354-363. doi:10.1111/1460-6984.12071

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Author Nund, Rebecca L.
Ward, Elizabeth C.
Scarinci, Nerina A.
Cartmill, Bena
Kuipers, Pim
Porceddu, Sandro V.
Title Survivors' experiences of dysphagia-related services following head and neck cancer: implications for clinical practice
Journal name International Journal of Language and Communication Disorders   Check publisher's open access policy
ISSN 1368-2822
Publication date 2014-01-01
Year available 2014
Sub-type Article (original research)
DOI 10.1111/1460-6984.12071
Open Access Status Not yet assessed
Volume 49
Issue 3
Start page 354
End page 363
Total pages 10
Place of publication Oxford, United Kingdom
Publisher John Wiley & Sons
Language eng
Abstract Background
Formatted abstract
Background: It is known that people with dysphagia experience a number of negative consequences as a result of their swallowing difficulties following head and neck cancer management (HNC). However their perceptions and experiences of adjusting to dysphagia in the post-treatment phase, and the services received to assist this process, has not been studied.

Aims: To explore the lived experience of people with dysphagia following non-surgical treatment for HNC and examine their perceptions of service needs.

Methods & Procedures: A demographically diverse group of 24 people who had received radiotherapy for HNC in the past five years, and experienced dysphagia as a result of treatment, were recruited using maximum variation sampling. Each participant took part in a semi-structured, in-depth interview, where they reflected on their adjustment to, and recovery from dysphagia following treatment for HNC, as well as the dysphagia-related services they received during their treatment. Thematic analysis was used to analyse the transcripts and to identify key themes that emerged from the data.

Results: The main integrative theme was the desire for ongoing access to dysphagia-related services in order to adequately manage dysphagia. Within this integrative theme were five additional themes including: (1) entering the unknown: life after treatment for HNC; (2) making practical adjustments to live with dysphagia; (3) making emotional adjustments to live with dysphagia; (4) accessing support outside the hospital services; and (5) perceptions of dysphagia-related services.

Conclusions & Implications: The interviews revealed the need for both greater access to services and a desire for services which address the multitude of issues faced by people with dysphagia following HNC in the post-treatment period. Speech and language therapists managing this caseload need to ensure post-treatment services are available and address not only the physical but also the emotional and psychosocial changes impacting people with dysphagia in order to assist them to adjust to, and live successfully with dysphagia. Further research should be conducted to support the development of innovative services and to highlight dysphagia-related survivorship issues to governing bodies/policy makers.
Keyword Adjustment
Head and neck cancer
Qualitative research
Service delivery
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2015 Collection
School of Health and Rehabilitation Sciences Publications
School of Medicine Publications
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Citation counts: TR Web of Science Citation Count  Cited 10 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 10 times in Scopus Article | Citations
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Created: Sun, 27 Apr 2014, 07:32:56 EST by Rebecca Nund on behalf of School of Health & Rehabilitation Sciences