Upper limb post-stroke sensory impairments: the survivor's experience

Doyle, Susan D., Bennett, Sally and Dudgeon, Brian (2013) Upper limb post-stroke sensory impairments: the survivor's experience. Disability and Rehabilitation, Early Online 12: 1-8. doi:10.3109/09638288.2013.825649

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Author Doyle, Susan D.
Bennett, Sally
Dudgeon, Brian
Title Upper limb post-stroke sensory impairments: the survivor's experience
Journal name Disability and Rehabilitation   Check publisher's open access policy
ISSN 0963-8288
1464-5165
Publication date 2013-08-23
Year available 2013
Sub-type Article (original research)
DOI 10.3109/09638288.2013.825649
Open Access Status
Volume Early Online
Issue 12
Start page 1
End page 8
Total pages 8
Place of publication London, United Kingdom
Publisher Informa Healthcare
Language eng
Abstract Purpose: This study described stroke survivors' experiences of upper limb post-stroke sensory impairment (ULPSSI) and its rehabilitation. Methods: A qualitative descriptive study of 15 stroke survivors with ULPSSI using semi-structured interviews. A focus group of eight survivors reviewed thematic outcomes. Analysis was completed by three authors. Results: Three themes emerged: (1) What happened to my hand?: A description of the significant impact of sensory impairments on survivors roles and participation; (2) I was only just getting started: Survivors felt sensory impairments and the upper limb were ignored in rehabilitation and described being left on their own to devise their own rehabilitation; and (3) If I work hard then maybe someday: Survivors felt sensory impairments recovered slowly and was aided by working towards recovery and maintaining hope. Conclusions: Sensory impairments are significant for survivors and are deserving of greater clinical and research attention. In particular, assessments and interventions need further development and testing. This study's findings revealed the need to ascertain individual survivors' preference for involvement in decision making related to their rehabilitation planning. It also found survivors view recovery as extending well beyond current rehabilitation frameworks, necessitating further description of recovery and re-evaluation of service delivery to address survivors' needs.
Formatted abstract
Purpose: This study described stroke survivors’ experiences of upper limb post-stroke sensory impairment (ULPSSI) and its rehabilitation.

Methods: A qualitative descriptive study of 15 stroke survivors with ULPSSI using semi-structured interviews. A focus group of eight survivors reviewed thematic outcomes. Analysis was completed by three authors.

Results: Three themes emerged: (1) What happened to my hand?: A description of the significant impact of sensory impairments on survivors roles and participation; (2) I was only just getting started: Survivors felt sensory impairments and the upper limb were ignored in rehabilitation and described being left on their own to devise their own rehabilitation; and (3) If I work hard then maybe someday: Survivors felt sensory impairments recovered slowly and was aided by working towards recovery and maintaining hope.

Conclusions: Sensory impairments are significant for survivors and are deserving of greater clinical and research attention. In particular, assessments and interventions need further development and testing. This study’s findings revealed the need to ascertain individual survivors’ preference for involvement in decision making related to their rehabilitation planning. It also found survivors view recovery as extending well beyond current rehabilitation frameworks, necessitating further description of recovery and re-evaluation of service delivery to address survivors’ needs.

Implications for Rehabilitation
• Sensory impairments significantly impact stroke survivors’ roles and participation.
• Remediation of sensory impairments is important to survivors, but seems to be ignored in the rehabilitation process.
• Individual survivors’ preference for involvement in decision making related to their rehabilitation planning should be ascertained.
• Stroke survivors feel left on their own to address their upper limb impairments long after rehabilitation services have ended. The development of services beyond the normal rehabilitation timeframes is warranted.
Keyword Sensation
Stroke
Survivors
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Authors prepub title: "Stroke survivors experience of addressing sensory impairment and rehabilitation after stroke".

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2014 Collection
School of Health and Rehabilitation Sciences Publications
 
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Citation counts: TR Web of Science Citation Count  Cited 7 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 7 times in Scopus Article | Citations
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Created: Sat, 22 Mar 2014, 01:09:43 EST by Ms Sally Bennett on behalf of Occupational Therapy