Hand-held health records for individuals with intellectual disability: a systematic review

Nguyen, M., Lennox, N. and Ware, R. (2014) Hand-held health records for individuals with intellectual disability: a systematic review. Journal of Intellectual Disability Research, 58 12: 1172-1178. doi:10.1111/jir.12104

Attached Files (Some files may be inaccessible until you login with your UQ eSpace credentials)
Name Description MIMEType Size Downloads

Author Nguyen, M.
Lennox, N.
Ware, R.
Title Hand-held health records for individuals with intellectual disability: a systematic review
Journal name Journal of Intellectual Disability Research   Check publisher's open access policy
ISSN 0964-2633
Publication date 2014-12-01
Year available 2013
Sub-type Article (original research)
DOI 10.1111/jir.12104
Open Access Status
Volume 58
Issue 12
Start page 1172
End page 1178
Total pages 7
Place of publication Chichester, West Sussex, United Kingdom
Publisher Wiley-Blackwell Publishing
Language eng
Formatted abstract
Background Hand-held health records (HHHRs) aim to empower individuals with intellectual disability (ID) and improve the communication between all those involved in their health care. HHHRs can be used to identify additional health needs and contribute to improved treatment for individuals with ID. This review summarises evidence concerning the use of HHHRs with individuals with ID.

Methods Systematic searching of electronic databases and email contact with established researchers in the field were used to identify relevant articles related to the use of HHHRs among individuals with ID.

Results Seven articles were identified and included for review. Studies involved the development, evaluation, acceptability and facilitators and barriers of implementation of HHHRs. HHHRs did not lead to improved short-term healthcare activity, but did lead to more discussion about health problems, increased health-related knowledge and awareness of personal health issues.

Conclusions HHHRs are well accepted among users with ID. However, no short-term benefits were found and future research needs to examine the long-term effects of HHHRs.
Keyword Health diary
Health passports
Health record
Intellectual disability
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Published on-line 1 December 2013.

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2014 Collection
School of Public Health Publications
School of Medicine Publications
Version Filter Type
Citation counts: TR Web of Science Citation Count  Cited 5 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 6 times in Scopus Article | Citations
Google Scholar Search Google Scholar
Created: Thu, 30 Jan 2014, 19:27:21 EST by Nicholas Lennox on behalf of Medicine - Mater Hospital