We finally learnt to demand: Consumers' access to rehabilitation following traumatic brain injury

Copley, Anna, McAllister, Lindy and Wilson, Linda (2013) We finally learnt to demand: Consumers' access to rehabilitation following traumatic brain injury. Brain Impairment, 14 3: 436-449. doi:10.1017/BrImp.2013.32

Author Copley, Anna
McAllister, Lindy
Wilson, Linda
Title We finally learnt to demand: Consumers' access to rehabilitation following traumatic brain injury
Journal name Brain Impairment   Check publisher's open access policy
ISSN 1443-9646
Publication date 2013-12-01
Year available 2013
Sub-type Article (original research)
DOI 10.1017/BrImp.2013.32
Open Access Status Not yet assessed
Volume 14
Issue 3
Start page 436
End page 449
Total pages 14
Place of publication Cambridge, United Kingdom
Publisher Cambridge University Press
Language eng
Subject 2728 Clinical Neurology
2802 Behavioral Neuroscience
2805 Cognitive Neuroscience
2808 Neurology
3206 Neuropsychology and Physiological Psychology
3616 Speech and Hearing
Abstract Clinical care guidelines exist internationally recommending the appropriate standards of care for adults following brain injury. These guidelines recommend a care pathway including acute, inpatient and outpatient rehabilitation and community-based care. However, if and how these guidelines are implemented is largely unknown. The aim of this study was to explore the recollected continuum of care experienced by 202 adults with moderate to severe traumatic brain injury (TBI) in Victoria, Australia. The experiences of participants in this study were investigated using a mixed methods research approach (surveys and in-depth interviews). The results indicated that only 20% of participants in this study recollected receiving care in line with recommendations made in clinical care guidelines. Reasons they identified for their problematic access to services included: a lack of information about the services available, the absence of an advocate and services being restricted by limited funding. The findings of this study indicate that while guidelines provide recommendations regarding standards of care and can serve as a benchmark to improve the quality of services, they do not ensure the equitable delivery of services. Clinicians using these guidelines need to be aware of the factors that restrict clients' access to services and take these into account when planning the delivery of services.
Keyword access
best practice
consumers' preferences
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2014 Collection
School of Health and Rehabilitation Sciences Publications
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