Parents and children with cerebral palsy discuss communication needs in hospital

Hemsley, Bronwyn, Kuek, Melissa, Bastock, Kaely, Scarinci, Nerina and Davidson, Bronwyn (2013) Parents and children with cerebral palsy discuss communication needs in hospital. Developmental Neurorehabilitation, 16 6: 363-374. doi:10.3109/17518423.2012.758187

Author Hemsley, Bronwyn
Kuek, Melissa
Bastock, Kaely
Scarinci, Nerina
Davidson, Bronwyn
Title Parents and children with cerebral palsy discuss communication needs in hospital
Journal name Developmental Neurorehabilitation   Check publisher's open access policy
ISSN 1751-8423
Publication date 2013-01-01
Year available 2013
Sub-type Article (original research)
DOI 10.3109/17518423.2012.758187
Open Access Status Not yet assessed
Volume 16
Issue 6
Start page 363
End page 374
Total pages 12
Place of publication London, United Kingdom
Publisher Informa Healthcare
Language eng
Subject 2735 Pediatrics, Perinatology, and Child Health
2742 Rehabilitation
2806 Developmental Neuroscience
Abstract Objective: The aim of this study was to understand the communication needs and experiences of parents and children with cerebral palsy (CP) and complex communication needs (CCN) in hospital. Methods: Focus groups with 10 parents and interviews with seven children with CP and CCN were analysed for content themes. Results: Results demonstrated that children often want to communicate directly with hospital staff to: gain attention, answer yes/no, convey basic physical needs, give and receive information, control their environment and participate in preferred activities. Barriers to communication included lack of access to augmentative and alternative communication (AAC), staff preferring to communicate with parents and lack of time to communicate. Conclusions: Results highlight strategies for successful communication, the role of the parents in supporting communication and provision of AAC systems for children in hospital. Policy and practice implications in the preparation of children with CP and CCN for communication in hospital are discussed.
Keyword Augmentative and alternative communication
Cerebral palsy
Complex communication needs
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Author Post-Print Permissible

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2014 Collection
School of Health and Rehabilitation Sciences Publications
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Citation counts: TR Web of Science Citation Count  Cited 8 times in Thomson Reuters Web of Science Article | Citations
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