"I have quality of life...but...": Exploring support needs important to quality of life in head and neck cancer

Moore, K. A., Ford, P. J. and Farah, C. S. (2014) "I have quality of life...but...": Exploring support needs important to quality of life in head and neck cancer. European Journal of Oncology Nursing, 18 2: 192-200. doi:10.1016/j.ejon.2013.10.010

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Author Moore, K. A.
Ford, P. J.
Farah, C. S.
Title "I have quality of life...but...": Exploring support needs important to quality of life in head and neck cancer
Formatted title
I have quality of life…but…”: Exploring support needs important to quality of life in head and neck cancer
Journal name European Journal of Oncology Nursing   Check publisher's open access policy
ISSN 1462-3889
1532-2122
Publication date 2014-04-01
Year available 2013
Sub-type Article (original research)
DOI 10.1016/j.ejon.2013.10.010
Open Access Status
Volume 18
Issue 2
Start page 192
End page 200
Total pages 9
Place of publication London, United Kingdom
Publisher Churchill Livingstone
Language eng
Abstract Purpose of research: Head and neck cancer (HNC) treatment disrupts quality of life and is associated with individualised supportive care needs. This study aimed to describe the support needs that affected the QoL of HNC patients, and to describe how patients coped with unmet support needs.
Formatted abstract
Purpose of research Head and neck cancer (HNC) treatment disrupts quality of life and is associated with individualised supportive care needs. This study aimed to describe the support needs that affected the QoL of HNC patients, and to describe how patients coped with unmet support needs.

Methods Qualitative, semi-structured interviews were held with 8 participants previously treated for HNC. Participants were identified through snowball and convenience sampling methods. Interview data was analysed using content analysis (CA). Inductive CA was used to describe support needs and directed CA was guided by the stress appraisal and coping model to describe coping with unmet support needs.

Results
Support needs that affected QoL related to acute needs while undergoing treatment and support in coping with permanent treatment side effects. Coping with psychological stressors (i.e. depression and anxiety) affected QoL in the first six to twelve months following treatment. Coping was influenced by loss of access to the supportive hospital environment after treatment, and resulted in feelings of isolation post treatment.

Conclusions HNC patients drew support from professional and personal networks while undergoing treatment and post treatment. Patients described difficulties in coping with the side effects of treatment and accessing supportive care when away from the hospital setting. The transactional model of stress, appraisal and coping is useful in understanding the psychosocial outcomes of head and neck cancer; however conclusions from this study are limited by a small and homogenous sample.
Keyword Head and neck cancer
Support needs
Supportive care
Quality of life
Qualitative methods
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Published online 13 November 2013

Document type: Journal Article
Sub-type: Article (original research)
Collections: UQ Centre for Clinical Research Publications
Official 2014 Collection
School of Dentistry Publications
 
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Citation counts: TR Web of Science Citation Count  Cited 9 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 11 times in Scopus Article | Citations
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Created: Mon, 02 Dec 2013, 21:44:12 EST by Roheen Gill on behalf of School of Dentistry