"You need something like this to give you guidelines on what to do": patients' and partners' use and perceptions of a self-directed coping skills training resource

Lambert, Sylvie D., Girgis, Afaf, Turner, Jane, Regan, Tim, Candler, Hayley, Britton, Ben, Chambers, Suzanne, Lawsin, Catalina and Kayser, Karen (2013) "You need something like this to give you guidelines on what to do": patients' and partners' use and perceptions of a self-directed coping skills training resource. Supportive Care in Cancer, 21 12: 3451-3460. doi:10.1007/s00520-013-1914-4

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Author Lambert, Sylvie D.
Girgis, Afaf
Turner, Jane
Regan, Tim
Candler, Hayley
Britton, Ben
Chambers, Suzanne
Lawsin, Catalina
Kayser, Karen
Title "You need something like this to give you guidelines on what to do": patients' and partners' use and perceptions of a self-directed coping skills training resource
Formatted title
You need something like this to give you guidelines on what to do”: patients’ and partners’ use and perceptions of a self-directed coping skills training resource
Journal name Supportive Care in Cancer   Check publisher's open access policy
ISSN 0941-4355
1433-7339
Publication date 2013-08-17
Sub-type Article (original research)
DOI 10.1007/s00520-013-1914-4
Open Access Status
Volume 21
Issue 12
Start page 3451
End page 3460
Total pages 10
Place of publication Heidelberg, Germany
Publisher Springer
Language eng
Formatted abstract
Purpose This study aims to report on the acceptability of a self-directed coping skills intervention, called Coping-Together, for patients affected by cancer and their partners, including the strengths and limitations of the intervention design.

Methods This initial version of Coping-Together included a series of four booklets, which aimed to provide practical coping strategies for the day-to-day management of common physical and psychosocial challenges. Thirty semi-structured interviews were conducted with 27 patients and/or 14 partners. Interviews were audiorecorded, transcribed verbatim, and analyzed for content.

Results Participants endorsed the self-directed format, and the focus of Coping-Together on practical information was a feature that set it apart from other resources. The majority of participants interviewed felt that the proposed coping strategies were “doable”; however, only half of the participants reported learning new coping skills after reading the booklets. Additional benefits of reading the booklets were increasing awareness of challenges to prepare for, giving hope that something can help you “pull through”, providing a sense of normality, connecting patients and partners to people and services, and complementing support received from health professionals. Despite the general acceptability of the intervention, some aspects of its design were criticized, including the workbook-like exercises, expectations about using the resource together, level of guidance provided, and amount of information included. In general, most participants felt that too much negative information was included, whereas more experiential information was desired.

Conclusions Preliminary evaluation of Coping-Together supported its practical approach and highlighted improvements to enhance its contribution to patient and partner coping.
Keyword Oncology
Cancer
Coping
Qualitative study
Self-directed intervention
Caregivers
Partners
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Published online: 17 August 2013

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2014 Collection
School of Medicine Publications
 
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Citation counts: TR Web of Science Citation Count  Cited 6 times in Thomson Reuters Web of Science Article | Citations
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Created: Sun, 15 Sep 2013, 00:27:48 EST by Dr Jane Turner on behalf of Psychiatry - Royal Brisbane and Women's Hospital