Beginning treatment for pediatric acute myeloid leukemia: the family connection

McGrath, Pam, Patton, Mary Anne and Huff, Nicole (2005) Beginning treatment for pediatric acute myeloid leukemia: the family connection. Issues in Comprehensive Pediatric Nursing, 28 2: 97-114. doi:10.1080/01460860590950881


Author McGrath, Pam
Patton, Mary Anne
Huff, Nicole
Title Beginning treatment for pediatric acute myeloid leukemia: the family connection
Journal name Issues in Comprehensive Pediatric Nursing   Check publisher's open access policy
ISSN 0146-0862
1521-043X
Publication date 2005-01-01
Sub-type Article (original research)
DOI 10.1080/01460860590950881
Open Access Status Not Open Access
Volume 28
Issue 2
Start page 97
End page 114
Total pages 18
Place of publication London, United Kingdom
Publisher Informa Healthcare
Language eng
Abstract There is a loud silence on psycho-oncology research in relation to pediatric Acute Myeloid Leukemia (AML). This article is part of a series that begins to address the psycho-social hiatus. The present article documents the less obvious, often hidden, aspect of beginning treatment for pediatric AML - the "behind the scenes" experience of the home and family connection. The findings are from the first stage of a five year longitudinal study that examines through qualitative research the experience of childhood leukemia from the perspective of the child, siblings and parents. Open-ended interviews, audio-recorded and transcribed verbatim, were thematically analyzed with the assistance of the Non-numerical Unstructured Data by processes of Indexing Searching and Theory-building (NUD*IST) computer program. The findings emphasize the disruption to normalcy in relation to home life, school, and work, which is exacerbated for families who relocate for specialist treatment. The findings emphasise the need for support for families coping with childhood AML.
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Non-UQ

Document type: Journal Article
Sub-type: Article (original research)
Collection: School of Social Science Publications
 
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Created: Fri, 22 Mar 2013, 02:33:07 EST by Mary Anne Patton on behalf of School of Social Science