CKD.QLD: chronic kidney disease surveillance and research in Queensland, Australia

Venuthurupalli, Sree K., Hoy, Wendy E., Healy, Helen G., Salisbury, Anne and Fassett, Robert G. (2012) CKD.QLD: chronic kidney disease surveillance and research in Queensland, Australia. Nephrology Dialysis Transplantation, 27 SUPPL. 3: 139-145. doi:10.1093/ndt/gfs258

Author Venuthurupalli, Sree K.
Hoy, Wendy E.
Healy, Helen G.
Salisbury, Anne
Fassett, Robert G.
Title CKD.QLD: chronic kidney disease surveillance and research in Queensland, Australia
Journal name Nephrology Dialysis Transplantation   Check publisher's open access policy
ISSN 0931-0509
Publication date 2012-10-01
Sub-type Article (original research)
DOI 10.1093/ndt/gfs258
Open Access Status DOI
Volume 27
Issue SUPPL. 3
Start page 139
End page 145
Total pages 7
Editor Adeera Levin
Francesco Locatelli
Place of publication Oxford, United Kingdom
Publisher Oxford University Press
Language eng
Formatted abstract
Background: Chronic kidney disease (CKD) is recognized as a major public health problem in Australia with significant mortality, morbidity and economic burden. However, there is no comprehensive surveillance programme to collect, collate and analyse data on CKD in a systematic way.

Methods: We describe an initiative called CKD Queensland (CKD.QLD), which was established in 2009 to address this deficiency, and outline the processes and progress made to date. The foundation is a CKD Registry of all CKD patients attending public health renal services in Queensland, and patient recruitment and data capture have started.

Results: We have established through early work of CKD.QLD that there are over 11 500 CKD patients attending public renal services in Queensland, and these are the target population for our registry. Progress so far includes conducting two CKD clinic site surveys, consenting over 3000 patients into the registry and initiation of baseline data analysis of the first 600 patients enrolled at the Royal Brisbane and Women's Hospital (RBWH) site. In addition, research studies in dietary intake and CKD outcomes and in models of care in CKD patient management are underway.

Conclusions: Through the CKD Registry, we will define the distribution of CKD patients referred to renal practices in the public system in Queensland by region, remoteness, age, gender, ethnicity and socioeconomic status. We will define the clinical characteristics of those patients, and the CKD associations, stages, co-morbidities and current management. We will follow the course and outcomes in individuals over time, as well as group trends over time. Through our activities and outcomes, we are aiming to provide a nidus for other states in Australia to join in a national CKD registry and network.
Keyword Chronic kidney disease
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Special issue - CKD: A Research and Public Health Priority

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2013 Collection
School of Human Movement and Nutrition Sciences Publications
School of Medicine Publications
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