The nature of caregiving in children of a parent with multiple sclerosis from multiple sources and the associations between caregiving activities and youth adjustment overtime

Pakenham, Kenneth I. and Cox, Stephen (2012) The nature of caregiving in children of a parent with multiple sclerosis from multiple sources and the associations between caregiving activities and youth adjustment overtime. Psychology and Health, 27 3: 324-346. doi:10.1080/08870446.2011.563853


Author Pakenham, Kenneth I.
Cox, Stephen
Title The nature of caregiving in children of a parent with multiple sclerosis from multiple sources and the associations between caregiving activities and youth adjustment overtime
Journal name Psychology and Health   Check publisher's open access policy
ISSN 0887-0446
1476-8321
Publication date 2012-03-01
Year available 2011
Sub-type Article (original research)
DOI 10.1080/08870446.2011.563853
Volume 27
Issue 3
Start page 324
End page 346
Total pages 23
Place of publication Abingdon, Oxon, United Kingdom
Publisher Routledge
Collection year 2013
Language eng
Abstract This study explored youth caregiving for a parent with multiple sclerosis (MS) from multiple perspectives, and examined associations between caregiving and child negative (behavioural emotional difficulties, somatisation) and positive (life satisfaction, positive affect, prosocial behaviour) adjustment outcomes overtime. A total of 88 families participated; 85 parents with MS, 55 partners and 130 children completed questionnaires at Time 1. Child caregiving was assessed by the Youth Activities of Caregiving Scale (YACS). Child and parent questionnaire data were collected at Time 1 and child data were collected 12 months later (Time 2). Factor analysis of the child and parent YACS data replicated the four factors (instrumental, social-emotional, personal-intimate, domestic-household care), all of which were psychometrically sound. The YACS factors were related to parental illness and caregiving context variables that reflected increased caregiving demands. The Time 1 instrumental and social-emotional care domains were associated with poorer Time 2 adjustment, whereas personal-intimate was related to better adjustment and domestic-household care was unrelated to adjustment. Children and their parents exhibited highest agreement on personal-intimate, instrumental and total caregiving, and least on domestic-household and social-emotional care. Findings delineate the key dimensions of young caregiving in MS and the differential links between caregiving activities and youth adjustment.
Keyword Children
Adolescents
Caregiving
Multiple sclerosis
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Available online: 28 Jun 2011

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2013 Collection
School of Psychology Publications
 
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Citation counts: TR Web of Science Citation Count  Cited 14 times in Thomson Reuters Web of Science Article | Citations
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Created: Wed, 14 Mar 2012, 01:09:12 EST by Professor Kenneth Pakenham on behalf of School of Psychology