Patient preferences for the delivery of disease management in chronic heart failure: A qualitative study

Whitty, Jennifer A., Carrington, Melinda J., Stewart, Simon, Holliday, Julie, Marwick, Thomas H. and Scuffham, Paul A. (2012) Patient preferences for the delivery of disease management in chronic heart failure: A qualitative study. Journal of Cardiovascular Nursing, 27 3: 201-207. doi:10.1097/JCN.0b013e31821abf22

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Author Whitty, Jennifer A.
Carrington, Melinda J.
Stewart, Simon
Holliday, Julie
Marwick, Thomas H.
Scuffham, Paul A.
Title Patient preferences for the delivery of disease management in chronic heart failure: A qualitative study
Journal name Journal of Cardiovascular Nursing   Check publisher's open access policy
ISSN 0889-4655
Publication date 2012-05-01
Year available 2011
Sub-type Article (original research)
DOI 10.1097/JCN.0b013e31821abf22
Volume 27
Issue 3
Start page 201
End page 207
Total pages 7
Place of publication Philadelphia, PA, U.S.A.
Publisher Lippincott Williams & Wilkins
Language eng
Formatted abstract
Background and Research Objective: Chronic heart failure (CHF) management programs (CHF-MPs) are applied in different ways including via face-to-face settings. However, we know little about consumer preferences when applying CHF-MPs via a patient’s home or specialist hospital clinic. The aim of this pilot study was to explore CHF-MP characteristics that are considered desirable by patients with CHF.
Subject and Methods: Semistructured interviews with a purposive sample of 12 CHF patients.
Results: Participants had a mean age of 61 (SD, 17) years, 3 were female, and the majority was of white background. Most were assessed as either functional New York Heart Association class III (n = 3) or IV (n = 6). Home- and clinic-based CHF-MPs were preferred by 5 and 7 participants, respectively. Key themes around patient preferences related to practical aspects of program delivery and social and peer support, as well as health-related benefits that translate to traditional outcomes in program evaluations. Participants identified transport, cost, and ill health as barriers to attending a clinic-based program. However, they also highlighted benefits (eg, the ability to share experiences with other patients) that may be difficult to provide with a home-based service unless specifically organized. Conclusions: These preliminary data suggest that patients value aspects of a program beyond those directly related to health outcomes. They also recognize a need for flexibility in program delivery, with potential preferences for home- or clinic-based programs depending largely on individual patient circumstances. More definitive studies are required to explore how best to cater for individual preferences while optimizing health outcomes.
Keyword Heart failure
Management program
Patient preferences
Service delivery
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes Published online 13 July 2011

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2012 Collection
School of Medicine Publications
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Citation counts: TR Web of Science Citation Count  Cited 9 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 11 times in Scopus Article | Citations
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Created: Wed, 28 Sep 2011, 22:24:56 EST by Matthew Lamb on behalf of School of Medicine