Living with parental multiple sclerosis: Children's experiences and clinical implications

Turpin, Merrill, Leech, Christine and Hackenberg, Louisa (2008) Living with parental multiple sclerosis: Children's experiences and clinical implications. Canadian Journal of Occupational Therapy, 75 3: 149-156. doi:10.1177/000841740807500306


Author Turpin, Merrill
Leech, Christine
Hackenberg, Louisa
Title Living with parental multiple sclerosis: Children's experiences and clinical implications
Journal name Canadian Journal of Occupational Therapy   Check publisher's open access policy
ISSN 0008-4174
Publication date 2008-01-01
Sub-type Article (original research)
DOI 10.1177/000841740807500306
Open Access Status Not yet assessed
Volume 75
Issue 3
Start page 149
End page 156
Total pages 8
Place of publication Toronto, Canada
Publisher Canadian Association of Occupational Therapists
Language eng
Subject 1199 Other Medical and Health Sciences
Abstract Background. Health professionals need to understand how chronic illness affects all family members. Purpose. This study explored the everyday experiences of children who have a parent with multiple sclerosis. Methods. Exploratory, semi-structured interviews were conducted with eight Queensland children, aged 7 to 14 years. Videotapes were transcribed verbatim and analysed inductively. Findings. Themes were labelled changing roles and responsibilities, emotional impact, and things that helped. Participants described taking on additional roles and responsibilities that restricted their participation in developmentally appropriate occupations, the emotional and practical impact of having a parent with MS and different methods they employed to cope with this impact. Implications. The findings emphasise the need for therapists to look beyond the diagnosed individual and see MS as a chronic illness affecting the whole family. Occupational therapists might assist parents and children to maintain their occupations through the provision of appropriate interventions and connection to referral networks.
Formatted abstract
Background
Health professionals need to understand how chronic illness affects all family members.

Purpose
This study explored the everyday experiences of children who have a parent with multiple sclerosis.

Methods
Exploratory, semi-structured interviews were conducted with eight Queensland children, aged 7 to 14 years. Videotapes were transcribed verbatim and analysed inductively.

Findings
Themes were labelled changing roles and responsibilities, emotional impact, and things that helped. Participants described taking on additional roles and responsibilities that restricted their participation in developmentally appropriate occupations, the emotional and practical impact of having a parent with MS and different methods they employed to cope with this impact.

Implications

The findings emphasise the need for therapists to look beyond the diagnosed individual and see MS as a chronic illness affecting the whole family. Occupational therapists might assist parents and children to maintain their occupations through the provision of appropriate interventions and connection to referral networks.
Keyword Multiple sclerosis
Chronic illness care
Chronic illness
Children’s experiences
Parental illness
Qualitative studies
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Excellence in Research Australia (ERA) - Collection
School of Health and Rehabilitation Sciences Publications
 
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Created: Wed, 10 Feb 2010, 02:34:41 EST by Gerald Martin on behalf of Faculty Of Health Sciences