Living with juvenile idiopathic arthritis: parents' experiences of treatment regimens and home exercise programmes

Jones, F., Rodger, S., Broderick, S. and De Monte, R. (2009) Living with juvenile idiopathic arthritis: parents' experiences of treatment regimens and home exercise programmes. British Journal of Occupational Therapy, 72 6: 249-258. doi:10.1177/030802260907200603


Author Jones, F.
Rodger, S.
Broderick, S.
De Monte, R.
Title Living with juvenile idiopathic arthritis: parents' experiences of treatment regimens and home exercise programmes
Journal name British Journal of Occupational Therapy   Check publisher's open access policy
ISSN 0308-0226
1477-6006
Publication date 2009-01-01
Sub-type Article (original research)
DOI 10.1177/030802260907200603
Open Access Status Not yet assessed
Volume 72
Issue 6
Start page 249
End page 258
Total pages 10
Editor Barnett, U.
Place of publication London, U.K.
Publisher College of Occupational Therapists Ltd.
Language eng
Subject C1
920201 Allied Health Therapies (excl. Mental Health Services)
110321 Rehabilitation and Therapy (excl. Physiotherapy)
Abstract The parents of children with juvenile idiopathic arthritis have been identified as pivotal facilitators of children's involvement in treatment regimens, including home exercise programmes. As such, parents' perspectives regarding the factors that influence participation in their children's treatment regimens, and in particular home exercise programmes, are addressed in this study. In depth, semi-structured interviews were conducted with 16 families. Rigour was ensured through a rich description of participants, peer and member checking, field journals and audit trails. Four key topics related to the process - the experience of the child's diagnosis, community access and participation, treatment regimens and the impact of these regimens on the parent's roles and relationships - and were addressed. Seven key themes emerged, namely the difficult process of diagnosis, the emotional toll, medications, exercises, life revolves around arthritis, parents' relationship with their child and other family members, and parents and paid work. The implications for clinical practice and future research are discussed.
Keyword Exercises
Home programmes
Juvenile idiopathic arthritis
Parent involvement
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: 2010 Higher Education Research Data Collection
School of Health and Rehabilitation Sciences Publications
 
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Created: Wed, 15 Jul 2009, 03:10:56 EST by Meredith Downes on behalf of School of Health & Rehabilitation Sciences