Ethical challenges of life story research with ex-prisoners with intellectual disability

Ellem, Kathleen, Wilson, Jill, Chui, Wing Hong and Knox, Marie (2008) Ethical challenges of life story research with ex-prisoners with intellectual disability. Disability and Society, 23 5: 497-509. doi:10.1080/09687590802177064

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Author Ellem, Kathleen
Wilson, Jill
Chui, Wing Hong
Knox, Marie
Title Ethical challenges of life story research with ex-prisoners with intellectual disability
Journal name Disability and Society   Check publisher's open access policy
ISSN 1360-0508
0968-7599
Publication date 2008-08-01
Year available 2008
Sub-type Article (original research)
DOI 10.1080/09687590802177064
Open Access Status
Volume 23
Issue 5
Start page 497
End page 509
Total pages 13
Editor Len Barton
Place of publication London
Publisher Routledge
Language eng
Subject C1
949999 Law, Politics and Community Services not elsewhere classified
09 Engineering
920403 Disability and Functional Capacity
169999 Studies in Human Society not elsewhere classified
Abstract This paper outlines the ethical considerations when engaging in life story research with ex-prisoners with intellectual disability. Based on a study conducted in Queensland, Australia, the authors explore some of the challenges that have arisen through the lens of principle-based ethics. The significant disadvantage experienced by ex-prisoners with intellectual disability warrants further attention by social researchers, and care must be taken not to further harm this group through the research process. Issues pertaining to the broad ethical concepts of integrity, justice, respect for persons and beneficence are examined to identify the degree to which they can guide the actions of the life story researcher. Examples are given as to how the researcher responded to difficulties as they arose and the authors discuss ways forward from a principle-based approach.
Keyword intellectual disability
learning disability
life story research
prison
ethical challenges
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: 2009 Higher Education Research Data Collection
School of Nursing, Midwifery and Social Work Publications
 
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Citation counts: TR Web of Science Citation Count  Cited 10 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 13 times in Scopus Article | Citations
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Created: Sat, 18 Apr 2009, 03:32:39 EST by Elena Stewart on behalf of School of Social Work and Human Services