Making sense of caregiving for persons with multiple sclerosis (MS): The dimensional structure of sense making and relations with positive and negative adjustment

Pakenham, Kenneth I. (2008) Making sense of caregiving for persons with multiple sclerosis (MS): The dimensional structure of sense making and relations with positive and negative adjustment. International Journal of Behavioral Medicine, 15 3: 241-252. doi:10.1080/10705500802222345


Author Pakenham, Kenneth I.
Title Making sense of caregiving for persons with multiple sclerosis (MS): The dimensional structure of sense making and relations with positive and negative adjustment
Journal name International Journal of Behavioral Medicine   Check publisher's open access policy
ISSN 1070-5503
1532-7558
Publication date 2008-09-01
Year available 2008
Sub-type Article (original research)
DOI 10.1080/10705500802222345
Open Access Status
Volume 15
Issue 3
Start page 241
End page 252
Total pages 12
Editor Joost Dekker
Place of publication Boston, Mass., USA
Publisher Springer Boston
Language eng
Subject C1
170106 Health, Clinical and Counselling Psychology
920202 Carer Health
Abstract Background: Sense making is a meaning-making process that refers to the development of explanations for adversity. Despite a growing interest in this construct within the chronic illness literature, it has been neglected in research on carers. Purpose: This study examines the dimensional structure of a multi-item measure of sense making in carers of people with multiple sclerosis (MS) and investigates relations between sense making and both positive and negative adjustment outcomes. Method: Participants were 232 carers and their care recipients. Questionnaires were completed at first assessment (time 1) and 12 months later (time 2). Results: Factor analysis of the Carer Sense Making Scale (CSMS) revealed six psychometrically sound factors: catalyst for change, acceptance, spiritual perspective, incomprehensible. relationship ties, and causal attribution. Results of regression analyses indicated that the time 2 CSMS factors accounted for significant amounts of variance in each of the time 2 adjustment outcomes (life satisfaction, positive affect, anxiety, depression, care recipient adjustment ratings of carer) after controlling for time 1 adjustment and relevant demographic and illness variables. Conclusion: Findings delineate the dimensional structure of sense making in caregiving and the differential links between sense-making dimensions and adjustment, and have implications for the measurement of sense making.
Formatted abstract
Background: Sense making is a meaning-making process that refers to the development of explanations for adversity. Despite a growing interest in this construct within the chronic illness literature, it has been neglected in research on carers.

Purpose: This study examines the dimensional structure of a multi-item measure of sense making in carers of people with multiple sclerosis (MS) and investigates relations between sense making and both positive and negative adjustment outcomes.

Method: Participants were 232 carers and their care recipients. Questionnaires were completed at first assessment (time 1) and 12 months later (time 2).

Results: Factor analysis of the Carer Sense Making Scale (CSMS) revealed six psychometrically sound factors: catalyst for change, acceptance, spiritual perspective, incomprehensible, relationship ties, and causal attribution. Results of regression analyses indicated that the time 2 CSMS factors accounted for significant amounts of variance in each of the time 2 adjustment outcomes (life satisfaction, positive affect, anxiety, depression, care recipient adjustment ratings of carer) after controlling for time 1 adjustment and relevant demographic and illness variables.

Conclusion: Findings delineate the dimensional structure of sense making in caregiving and the differential links between sense-making dimensions and adjustment, and have implications for the measurement of sense making.
Keyword sense making
multiple sclerosis
carers
coping
quality of life
meaning
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: 2009 Higher Education Research Data Collection
School of Psychology Publications
 
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Citation counts: TR Web of Science Citation Count  Cited 16 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 18 times in Scopus Article | Citations
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Created: Thu, 16 Apr 2009, 04:22:57 EST by Lucy O'Brien on behalf of School of Psychology