Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study

Bensink, M. E., Armfield, N. R., Pinkerton, R., Irving, H., Hallahan, A. R., Theodoros, D. G., Russell, T., Barnett, A. G., Scuffham, P. A. and Wootton, R. (2009) Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study. Palliative Medicine, 23 3: 228-237. doi:10.1177/0269216308100251


Author Bensink, M. E.
Armfield, N. R.
Pinkerton, R.
Irving, H.
Hallahan, A. R.
Theodoros, D. G.
Russell, T.
Barnett, A. G.
Scuffham, P. A.
Wootton, R.
Title Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study
Journal name Palliative Medicine   Check publisher's open access policy
ISSN 1477-030X
Publication date 2009-01-01
Year available 2008
Sub-type Article (original research)
DOI 10.1177/0269216308100251
Open Access Status DOI
Volume 23
Issue 3
Start page 228
End page 237
Total pages 10
Editor Geffory Hanks
Place of publication UK
Publisher Sage Science Press
Language eng
Subject C1
111299 Oncology and Carcinogenesis not elsewhere classified
111403 Paediatrics
111707 Family Care
920299 Health and Support Services not elsewhere classified
920211 Palliative Care
Abstract Videotelephony (real-time audio-visual communication) has been used successfully in adult palliative home care. This paper describes two attempts to complete an RCT (both of which were abandoned following difficulties with family recruitment), designed to investigate the use of videotelephony with families receiving palliative care from a tertiary paediatric oncology service in Brisbane, Australia. To investigate whether providing videotelephone-based support was acceptable to these families, a 12-month non-randomised acceptability trial was completed. Seventeen palliative care families were offered access to a videotelephone support service in addition to the 24 hours ‘on-call’ service already offered. A 92% participation rate in this study provided some reassurance that the use of videotelephones themselves was not a factor in poor RCT participation rates. The next phase of research is to investigate the integration of videotelephone-based support from the time of diagnosis, through outpatient care and support, and for palliative care rather than for palliative care in isolation. Trial registration ACTRN 12606000311550
Formatted abstract


Keyword clinical trial
cost-analysis
home telehealth
oncology
palliative care
paediatric
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

 
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Created: Wed, 25 Mar 2009, 22:40:32 EST by Lisa Garner on behalf of Centre for On-Line Health