Development and Evaluation of a Web Site about Diabetes for Adults with Mental Retardation

Rey-Conde, Therese, Lennox, Nicholas and McPhee, Jude (2005) Development and Evaluation of a Web Site about Diabetes for Adults with Mental Retardation.

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Title Development and Evaluation of a Web Site about Diabetes for Adults with Mental Retardation
Abstract/Summary Objective: Our objective is to describe the development and evaluation of a tool for people with diabetes and mental retardation. The tool is also suitable for care providers. Methods: The design process was collaborative with adults with mental retardation, care providers, and professionals (n=76) in 39 focus groups. We based the content of the website primarily on the findings from those discussions, and secondly on evidence from the literature. An endocrinologist, a general practitioner, several diabetes educators, occupational therapists, nurses, nutritionists, podiatrists, service managers, clinical biochemists and a pharmacist reviewed the included material. All material used was evidence based. For the people with mental retardation we produced a site consisting largely of graphics and images - it addresses 14 areas of relevance in diabetes education and management. For the care providers the same site is used but with a different menu and with content of a higher literacy level. It addresses most of the education and management issues expressed as being of interest or causes of anxiety to care providers in the focus groups. To make sure the site was user-friendly we involved end-stage users and professionals in all stages of the development process. Results: We ran a trial of the tool for one month to evaluate its effectiveness with a group of 21 care providers and 6 people with both mental retardation and diabetes. The final design is the educational web site to be found at Each section can be printed out as a hard copy. Preliminary results are promising and the site is having about 750 pages accessed per month. The tool was well accepted as assessed by interviews by both people with mental retardation and their care providers. One third of care providers changed their behaviour in a wide range of areas of diabetes care after using the tool for a short time. Conclusion: The consultative process that we used in this project resulted in a unique and highly acceptable tool for patient and care provider education. Practice Implications: This website is designed for people with mental retardation and their caregivers. Those people who have low literacy skills, or are isolated from conventional service providers could also use find it practical.
Keyword Diabetes
Mental retardation
Intellectual disability
Web-based learning
Care providers
Date 2005-01-01
Subjects 321203 Health Information Systems (incl. Surveillance)
321212 Care for Disabled
321216 Health Promotion
321211 Residential Client Care
Author Rey-Conde, Therese
Lennox, Nicholas
McPhee, Jude
Open Access Status Other
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Document type: Preprint
Collection: School of Medicine Publications
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Created: Wed, 05 Oct 2005, 10:00:00 EST by Therese Rey-conde on behalf of School of Medicine