Gender differences in attitudes among those at risk for Huntington's disease

Taylor, Sandra (2005) Gender differences in attitudes among those at risk for Huntington's disease. Genetic Testing, 9 2: 152-157. doi:10.1089/gte.2005.9.152

Author Taylor, Sandra
Title Gender differences in attitudes among those at risk for Huntington's disease
Journal name Genetic Testing   Check publisher's open access policy
ISSN 1090-6576
Publication date 2005-06
Sub-type Article (original research)
DOI 10.1089/gte.2005.9.152
Volume 9
Issue 2
Start page 152
End page 157
Total pages 6
Editor P.R. Rowley
Place of publication Larchmont, NY, U.S.A.
Publisher Mary Ann Liebert
Collection year 2005
Language eng
Subject C1
370299 Social Work not elsewhere classified
750303 Gender
Abstract This report presents and discusses selected findings regarding gender differences from an Australian-based study that investigated attitudes of individuals at risk for Huntington's disease (HD) towards genetic risk and predictive testing. Clear gender differences emerged regarding perceived coping capacity with regard to predictive testing, as well as disclosure of the genetic risk for HD to others. Female participants were more likely to disclose their genetic risk to others, including their medical practitioners, while male participants were three times more fearful of disclosing their genetic risk to others. These findings are of interest in light of gender differences that have consistently been reported regarding the uptake of predictive testing for HD, other genetic conditions, and health services more generally. While gender differences cannot provide a fully explanatory framework for differential uptake of predictive genetic testing, men and women may experience and respond differently to the genetic risk for HD and possibly other inherited disorders. The meanings of genetic risk to men and women warrants further exploration, given anticipated increases in genetic testing for more common conditions, especially if post-test interventions are possible. These issues are also relevant within the context of individuals' concerns about the potential for discrimination on the basis of genetic risk or genetic test information.
Keyword Genetics & Heredity
Medicine, Research & Experimental
Genetic Discrimination
Q-Index Code C1

Document type: Journal Article
Sub-type: Article (original research)
Collections: 2006 Higher Education Research Data Collection
School of Nursing, Midwifery and Social Work Publications
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Citation counts: TR Web of Science Citation Count  Cited 21 times in Thomson Reuters Web of Science Article | Citations
Scopus Citation Count Cited 23 times in Scopus Article | Citations
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Created: Wed, 15 Aug 2007, 07:44:07 EST