Methodological Considerations in the Study of Genetic Discrimination

Treloar, Susan, Taylor, Sandra, Otlowski, Margaret, Barlow-Stewart, Kristine, Stranger, Mark and Chenoweth, Kellie (2005) Methodological Considerations in the Study of Genetic Discrimination. Community Genetics, 7 4: 161-228. doi:10.1159/000082254


Author Treloar, Susan
Taylor, Sandra
Otlowski, Margaret
Barlow-Stewart, Kristine
Stranger, Mark
Chenoweth, Kellie
Title Methodological Considerations in the Study of Genetic Discrimination
Journal name Community Genetics   Check publisher's open access policy
ISSN 1422-2795
Publication date 2005-01
Sub-type Critical review of research, literature review, critical commentary
DOI 10.1159/000082254
Volume 7
Issue 4
Start page 161
End page 228
Total pages 68
Editor L. P. ken Tate
Place of publication Basel, Switzerland
Publisher Karger
Collection year 2004
Language eng
Subject C1
370602 Sociology and Social Studies of Science and Technology
730299 Public health not elsewhere classified
Abstract The potential significance and dimensions of genetic discrimination have been described extensively in published literature, but epidemiological and verified case data are limited. Obtaining unbiased data from individuals about discrimination which has been based on erroneous or unjustifiable assumptions about their genetic predispositions poses unique challenges. Through review and discussion of research literature, we identify methodological considerations for collecting valid epidemiological data on genetic discrimination from individuals in the community; in particular, we consider issues which relate to sampling, selection and response. We identify issues to promote sound study design, with particular attention to verification of genetic discrimination, and highlight the importance of clinical and genetic knowledge of complex genotype-phenotype relationships.
Q-Index Code C1

Document type: Journal Article
Sub-type: Critical review of research, literature review, critical commentary
Collections: Excellence in Research Australia (ERA) - Collection
2005 Higher Education Research Data Collection
School of Public Health Publications
Institute for Molecular Bioscience - Publications
 
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Created: Wed, 15 Aug 2007, 04:38:01 EST