Care in subsequent pregnancies following stillbirth: an international survey of parents

Wojcieszek, A. M., Boyle, F. M., Belizan, J. M., Cassidy, J., Cassidy, P., Erwich, J. J. H. M., Farrales, L., Gross, M. M., Heazell, A. E. P., Leisher, S. H., Mills, T., Murphy, M., Pettersson, K., Ravaldi, C., Ruidiaz, J., Siassakos, D., Silver, R. M., Story, C., Vannacci, A., Middleton, P., Ellwood, D. and Flenady, V. (2016) Care in subsequent pregnancies following stillbirth: an international survey of parents. BJOG: an international journal of obstetrics and gynaecology, . doi:10.1111/1471-0528


Author Wojcieszek, A. M.
Boyle, F. M.
Belizan, J. M.
Cassidy, J.
Cassidy, P.
Erwich, J. J. H. M.
Farrales, L.
Gross, M. M.
Heazell, A. E. P.
Leisher, S. H.
Mills, T.
Murphy, M.
Pettersson, K.
Ravaldi, C.
Ruidiaz, J.
Siassakos, D.
Silver, R. M.
Story, C.
Vannacci, A.
Middleton, P.
Ellwood, D.
Flenady, V.
Title Care in subsequent pregnancies following stillbirth: an international survey of parents
Journal name BJOG: an international journal of obstetrics and gynaecology   Check publisher's open access policy
ISSN 1470-0328
1471-0528
Publication date 2016-11-30
Sub-type Article (original research)
DOI 10.1111/1471-0528
Open Access Status Not yet assessed
Total pages 9
Place of publication Chichester, West Sussex, United Kingdom
Publisher Wiley-Blackwell Publishing
Collection year 2017
Language eng
Formatted abstract
Objective: To assess the frequency of additional care, and parents' perceptions of quality, respectful care, in pregnancies subsequent to stillbirth.

Design: Multi-language web-based survey.

Setting: International.

Population: A total of 2716 parents, from 40 high- and middle-income countries.

Methods: Data were obtained from a broader survey of parents' experiences following stillbirth. Data were analysed using descriptive statistics and stratified by geographic region. Subgroup analyses explored variation in additional care by gestational age at index stillbirth.

Main outcome measures: Frequency of additional care, and perceptions of quality, respectful care.

Results: The majority (66%) of parents conceived their subsequent pregnancy within 1 year of stillbirth. Additional antenatal care visits and ultrasound scans were provided for 67% and 70% of all parents, respectively, although there was wide variation across geographic regions. Care addressing psychosocial needs was less frequently provided, such as additional visits to a bereavement counsellor (10%) and access to named care provider's phone number (27%). Compared with parents whose stillbirth occurred at ≤ 29 weeks of gestation, parents whose stillbirth occurred at ≥ 30 weeks of gestation were more likely to receive various forms of additional care, particularly the option for early delivery after 37 weeks. Around half (47-63%) of all parents felt that elements of quality, respectful care were consistently applied, such as spending enough time with parents and involving parents in decision-making.

Conclusions: Greater attention is required to providing thoughtful, empathic and collaborative care in all pregnancies following stillbirth. Specific education and training for health professionals is needed.

Tweetable abstract: More support for providing quality care in pregnancies after stillbirth is needed.
Keyword Epidemiology
Management
Psychosocial/psychology
Recurrence
Stillbirth
Subsequent pregnancy
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

 
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Created: Fri, 27 Jan 2017, 10:01:50 EST by Ms Aleena Wojcieszek on behalf of Faculty of Medicine