Worse and worse off: the impact of lymphedema on work and career after breast cancer

Boyages, John, Kalfa, Senia, Xu, Ying, Koelmeyer, Louise, Mackie, Helen, Viveros, Hector, Taksa, Lucy and Gollan, Paul (2016) Worse and worse off: the impact of lymphedema on work and career after breast cancer. SpringerPlus, 5 1: . doi:10.1186/s40064-016-2300-8

Author Boyages, John
Kalfa, Senia
Xu, Ying
Koelmeyer, Louise
Mackie, Helen
Viveros, Hector
Taksa, Lucy
Gollan, Paul
Title Worse and worse off: the impact of lymphedema on work and career after breast cancer
Journal name SpringerPlus   Check publisher's open access policy
ISSN 2193-1801
Publication date 2016-05-17
Year available 2016
Sub-type Article (original research)
DOI 10.1186/s40064-016-2300-8
Open Access Status DOI
Volume 5
Issue 1
Total pages 8
Place of publication Heidelberg, Germany
Publisher SpringerOpen
Collection year 2017
Language eng
Formatted abstract
Purpose: Our study examines the impact of breast cancer-related lymphedema on women’s work and career. Our research addresses a significant knowledge gap regarding the additional impact of lymphedema on breast cancer survivors.

Methods: An online national survey was conducted with 361 women who either had breast cancer without lymphedema (Group 1, n = 209) or breast cancer with lymphedema (Group 2, n = 152). Participant recruitment was supported by the Breast Cancer Network Australia and the Australasian Lymphology Association.

Results: Both breast cancer and lymphedema had a significant negative influence on women’s work and career. Respondents reported changes in employment resulting from stress and/or physical impairment, which affected attendance and work performance. The perceived negative impact of breast cancer on respondents’ work and career was noticeably greater in Group 2 (63 %) than Group 1 (51 %) (p = 0.03). Of the participants who were in paid employment at some time (either at diagnosis of lymphedema or at the time of the survey (n = 103), 43 (42 %) indicated that lymphedema impacted their work performance. The impact of lymphedema on work was incremental with increased severity of lymphedema (range 22–75 %). The annual number of days off work for subclinical/mild lymphedema participants was 1.4 versus 8.1 days for moderate or severe participants (p = 0.003).

Conclusions: This study identifies an additional detrimental effect of lymphedema on women’s work and career over and above the initial impact of breast cancer and provides empirical evidence for future prospective studies and policy improvement.
Keyword Breast cancer-related lymphedema
Work and career
Breast cancer survivors
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: HERDC Pre-Audit
Australian Institute for Business and Economics
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