Health professionals' perspectives on information provision for patients with brain tumours and their families

Langbecker, D., Janda, M. and Yates, P. (2013) Health professionals' perspectives on information provision for patients with brain tumours and their families. European Journal of Cancer Care, 22 2: 179-187. doi:10.1111/ecc.12011


Author Langbecker, D.
Janda, M.
Yates, P.
Title Health professionals' perspectives on information provision for patients with brain tumours and their families
Journal name European Journal of Cancer Care   Check publisher's open access policy
ISSN 0961-5423
1365-2354
Publication date 2013-03
Sub-type Article (original research)
DOI 10.1111/ecc.12011
Open Access Status Not Open Access
Volume 22
Issue 2
Start page 179
End page 187
Total pages 9
Place of publication Chichester, West Sussex United Kingdom
Publisher Wiley-Blackwell Publishing
Language eng
Subject 2730 Oncology
Abstract A significant number of patients diagnosed with primary brain tumours report unmet information needs. Using concept mapping methodology, this study aimed to identify strategies for improving information provision, and to describe factors that health professionals understood to influence their provision of information to patients with brain tumours and their families. Concept mapping is a mixed-methods approach that uses statistical methods to represent participants' perceived relationships between elements as conceptual maps. These maps, and results of associated data collection and analyses, are used to extract concepts involved in information provision to these patients. Thirty health professionals working across a range of neuro-oncology roles and settings participated in the concept mapping process. Participants rated a care coordinator as the most important strategy for improving brain tumour care, with psychological support as a whole rated as the most important element of care. Five major themes were identified as facilitating information provision: health professionals' communication skills, style and attitudes; patients' needs and preferences; perceptions of patients' need for protection and initiative; rapport and continuity between patients and health professionals; and the nature of the healthcare system. Overall, health professionals conceptualised information provision as 'individualised', dependent on these interconnected personal and environmental factors.
Keyword Brain tumour
Health professionals
Information provision
Communication
Supportive care
Concept mapping
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Non-UQ

Document type: Journal Article
Sub-type: Article (original research)
Collection: Centre for Online Health Publications
 
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Created: Tue, 07 Jun 2016, 12:13:59 EST by Danette Langbecker on behalf of Centre for On-Line Health