Does treatment alleviate lymphedema symptoms? A cross-sectional study evaluating patient perspectives

Finnane, A., Janda, M. and Hayes, S. C. (2015) Does treatment alleviate lymphedema symptoms? A cross-sectional study evaluating patient perspectives. Lymphology, 48 3: 110-120.

Author Finnane, A.
Janda, M.
Hayes, S. C.
Title Does treatment alleviate lymphedema symptoms? A cross-sectional study evaluating patient perspectives
Journal name Lymphology   Check publisher's open access policy
ISSN 0024-7766
Publication date 2015-01-01
Sub-type Article (original research)
Open Access Status Not Open Access
Volume 48
Issue 3
Start page 110
End page 120
Total pages 11
Place of publication Tucson, AZ, United States
Publisher International Society of Lymphology
Collection year 2016
Language eng
Abstract Most studies evaluating lymphedema treatment effect focus on objective reductions in limb volume, with little attention given to subjective treatment outcomes. The objective of this work was to describe the range of lymphedema symptoms experienced by patients and the importance of symptom improvement following treatment. The second aim was to explore lymphedema treatment use and the effect of individual treatments on symptoms, from the patient’s perspective.Australian adults with lymphedema (n=421)completed a self-administered questionnaire. Information was collected about patients’symptoms, the importance of symptom improvement following treatment, as well as treatment types used and perceived effectiveness of each treatment. In addition to swelling, the vast majority of participants experienced heaviness and tightness in the affected region. Overall, symptoms of lymphedema varied between individuals but the majority considered subjective symptom improvement to be an important outcome of treatment. The most commonly used treatments were compression garments, self massage,prescribed exercises, and manual lymph drainage, and the majority (95%) of participants had used multiple treatments to manage their lymphedema. The impact of treatments on subjective symptoms varies widely between treatments. Consequently,in addition to objective measures of swelling,it is important to include patient-reported outcomes in future prospective lymphedema treatment studies.
Keyword Lymphedema
Treatment
Symptoms
Patient-reported outcomes
Compression
Massage
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2016 Collection
School of Medicine Publications
Centre for Online Health Publications
 
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Created: Fri, 05 Feb 2016, 23:41:20 EST by Anna Finnane on behalf of Centre for On-Line Health