Patient experiences of burn scars in adults and children and development of a health-related quality of life conceptual model: a qualitative study

Simons, Megan, Price, Nathaniel, Kimble, Roy and Tyack, Zephanie (2016) Patient experiences of burn scars in adults and children and development of a health-related quality of life conceptual model: a qualitative study. Burns, 42 3: 620-632. doi:10.1016/j.burns.2015.11.012


Author Simons, Megan
Price, Nathaniel
Kimble, Roy
Tyack, Zephanie
Title Patient experiences of burn scars in adults and children and development of a health-related quality of life conceptual model: a qualitative study
Journal name Burns   Check publisher's open access policy
ISSN 1879-1409
0305-4179
Publication date 2016-05
Year available 2016
Sub-type Article (original research)
DOI 10.1016/j.burns.2015.11.012
Open Access Status Not yet assessed
Volume 42
Issue 3
Start page 620
End page 632
Total pages 13
Place of publication Kidlington, Oxford, United Kingdom
Publisher Pergamon Press
Collection year 2017
Language eng
Formatted abstract
Purpose: The aim of this study was to understand the impact of burn scars on health-related quality of life (HRQOL) from the perspective of adults and children with burn scars, and caregivers to inform the development of a conceptual model of burn scar HRQOL.

Method: Twenty-one participants (adults and children) with burn scars and nine caregivers participated in semi-structured, face-to-face interviews between 2012 and 2013. During the interviews, participants were asked to describe features about their (or their child's) burn scars and its impact on everyday life. Two coders conducted thematic analysis, with consensus achieved through discussion and review with a third coder. The literature on HRQOL models was then reviewed to further inform the development of a conceptual model of burn scar HRQOL.

Results: Five themes emerged from the qualitative data: ‘physical and sensory symptoms’, ‘impact of burn scar interventions’, ‘impact of burn scar symptoms’, ‘personal factors’ and ‘change over time’. Caregivers offered further insights into family functioning after burn, and the impacts of burn scars and burn scar interventions on family life. In the conceptual model, symptoms (sensory and physical) of burn scars are considered proximal to HRQOL, with distal indicators including functioning (physical, emotional, social, cognitive), individual factors and the environment. Overall quality of life was affected by HRQOL.

Conclusion: Understanding the impact of burn scars on HRQOL and the development of a conceptual model will inform future burn scar research and clinical practice.
Keyword Burns
Cicatrix
Conceptual model
Health-related quality of life
Patient-reported outcomes
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

 
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