Factors influencing the research participation of adults with autism spectrum disorders

Haas, Kaaren, Costley, Debra, Falkmer, Marita, Richdale, Amanda, Sofronoff, Kate and Falkmer, Torbjorn (2016) Factors influencing the research participation of adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 46 5: 1793-1805. doi:10.1007/s10803-016-2708-6


Author Haas, Kaaren
Costley, Debra
Falkmer, Marita
Richdale, Amanda
Sofronoff, Kate
Falkmer, Torbjorn
Title Factors influencing the research participation of adults with autism spectrum disorders
Journal name Journal of Autism and Developmental Disorders   Check publisher's open access policy
ISSN 1573-3432
0162-3257
Publication date 2016-05
Sub-type Article (original research)
DOI 10.1007/s10803-016-2708-6
Volume 46
Issue 5
Start page 1793
End page 1805
Total pages 13
Place of publication New York, United States
Publisher Springer New York LLC
Collection year 2017
Language eng
Formatted abstract
Recruiting adults with autism spectrum disorders (ASD) into research poses particular difficulties; longitudinal studies face additional challenges. This paper reports on a mixed methods study to identify factors influencing the participation in longitudinal autism research of adults with ASD, including those with an intellectual disability, and their carers. Common and differentiating factors influencing the research participation of participants are identified and discussed. Factors influencing participation were found to differ both between and within participant categories. We propose a dichotomy whereby factors influencing research participation can be classified as those arising from a participant’s values, which act as either a motivator or a deterrent; and those based on convenience, which act as either an enabler or inhibitor. These findings are applicable to research studies that seek to recruit adults with ASD as participants.
Keyword Asperger syndrome
Autism
Incentive
Longitudinal studies
Motivation
Research participation
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: HERDC Pre-Audit
School of Psychology Publications
 
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