Feasibility and acceptability of patient partnership to improve access to primary care for the physical health of patients with severe mental illnesses: An interactive guide

Pelletier, Jean-Francois, Lesage, Alain, Boisvert, Christine, Denis, Frederic, Bonin, Jean-Pierre and Kisely, Steve (2015) Feasibility and acceptability of patient partnership to improve access to primary care for the physical health of patients with severe mental illnesses: An interactive guide. International Journal for Equity in Health, 14 78: . doi:10.1186/s12939-015-0200-0


Author Pelletier, Jean-Francois
Lesage, Alain
Boisvert, Christine
Denis, Frederic
Bonin, Jean-Pierre
Kisely, Steve
Title Feasibility and acceptability of patient partnership to improve access to primary care for the physical health of patients with severe mental illnesses: An interactive guide
Journal name International Journal for Equity in Health   Check publisher's open access policy
ISSN 1475-9276
Publication date 2015-09-14
Year available 2015
Sub-type Article (original research)
DOI 10.1186/s12939-015-0200-0
Open Access Status DOI
Volume 14
Issue 78
Total pages 9
Place of publication London, United Kingdom
Publisher BioMed Central
Collection year 2016
Language eng
Formatted abstract
Introduction
Even in countries with universal healthcare systems, excess mortality rates due to physical chronic diseases in patients also suffering from serious mental illness like schizophrenia is such that their life expectancy could be lessened by up to 20 years. The possible explanations for this disparity include: unhealthy habits (i.e. smoking; lack of exercise); side-effects of psychotropic medication; delays in the detection or initial presentation leading to a more advanced disease at diagnosis; and inequity of access to services. The main objective of this paper is to explore the feasibility and acceptability of patient partnership for developing an interactive guide to improve access to primary care providers for chronic diseases management and health promotion among patients with severe mental illnesses.

Methods
A participatory action research design was used to engage patients with mental illness as full research partners for a strategy for patient-oriented research in primary care for persons with schizophrenia who also have chronic physical illnesses. This strategy was also developed in partnership with a health and social services centre responsible for the health of the population of a territory with about 100,000 inhabitants in East-end Montreal, Canada. A new interactive guide was developed by patient research partners and used by 146 participating patients with serious mental illness who live on this territory, for them to be better prepared for their medical appointment with a General Practitioner by becoming more aware of their own physical condition.

Results
Patient research partners produced a series of 33 short videos depicting signs and symptoms of common chronic diseases and risk factors for the leading causes of mortality and study participants were able to complete the corresponding 33-item questionnaire on an electronic touch screen tablet. What proved to be most relevant in terms of interactivity was the dynamic that has developed among the study participants during the small group learning sessions, a training technique designed for healthcare professionals that was adapted for this project for, and with patient partners.

Conclusion
This research has shown the feasibility and acceptability of patient partnership and patient-oriented research approaches to the R&D process of a new medical tool and intervention for patients with serious mental illness, and its acceptability for addressing inequity of this disadvantaged population in terms of access to primary care providers.
Keyword Strategy for patient-oriented research
Interactivity
User-led researchParticipation
Global health
Personalization
Small group learning
Patient partnership
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2016 Collection
School of Medicine Publications
 
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