Psycho-oncology assessment in Chinese populations: A systematic review of quality of life and psychosocial measures

Hyde, M.K., Chambers, S.K., Shum, D., Ip, D. and Dunn, J. (2015) Psycho-oncology assessment in Chinese populations: A systematic review of quality of life and psychosocial measures. European Journal of Cancer Care, 25 5: 691-718. doi:10.1111/ecc.12367


Author Hyde, M.K.
Chambers, S.K.
Shum, D.
Ip, D.
Dunn, J.
Title Psycho-oncology assessment in Chinese populations: A systematic review of quality of life and psychosocial measures
Journal name European Journal of Cancer Care   Check publisher's open access policy
ISSN 1365-2354
0961-5423
Publication date 2015-08-20
Year available 2016
Sub-type Article (original research)
DOI 10.1111/ecc.12367
Open Access Status Not Open Access
Volume 25
Issue 5
Start page 691
End page 718
Total pages 28
Place of publication Chichester, West Sussex, United Kingdom
Publisher Wiley-Blackwell Publishing
Collection year 2016
Language eng
Formatted abstract
This systematic review describes psychosocial and quality of life (QOL) measures used in psycho-oncology research with cancer patients and caregivers in China. Medline and PsycINFO databases were searched (1980–2014). Studies reviewed met the following criteria: English language; peer-reviewed; sampled Chinese cancer patients/caregivers; developed, validated or assessed psychometric properties of psychosocial or QOL outcome measures; and reported validation data. The review examined characteristics of measures and participants, translation and cultural adaptation processes and psychometric properties of the measures. Ninety five studies met review criteria. Common characteristics of studies reviewed were they: assessed primarily QOL measures, sampled patients with breast, colorectal, or head and neck cancer, and validated existing measures (>80%) originating in North America or Europe. Few studies reported difficulties translating measures. Regarding psychometric properties of the measures >50% of studies reported subscale reliabilities <α = 0.70, <50% reported test–retest reliability, and <30% reported divergent validity. Few reported sensitivity, specificity or responsiveness. Improved accuracy and transparency of reporting for translation, cultural adaptation and psychometric testing of psychosocial measures is needed. Developing support structures for translating and validating psychosocial measures would enable this and ensure Chinese psycho-oncology clinical practice and research keeps pace with international focus on patient reported outcome measures and data management.
Keyword Psycho-oncology
China
Validation
Psychometrics
Psychosocial
Quality of life
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ

Document type: Journal Article
Sub-type: Article (original research)
Collections: UQ Centre for Clinical Research Publications
Official 2016 Collection
School of Social Science Publications
 
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