A time-sovereignty approach to understanding carers of cancer patients' experiences and support preferences

Olson, Rebecca E. (2014) A time-sovereignty approach to understanding carers of cancer patients' experiences and support preferences. European Journal of Cancer Care, 23 2: 239-248. doi:10.1111/ecc.12121


Author Olson, Rebecca E.
Title A time-sovereignty approach to understanding carers of cancer patients' experiences and support preferences
Journal name European Journal of Cancer Care   Check publisher's open access policy
ISSN 0961-5423
1365-2354
Publication date 2014-03
Year available 2014
Sub-type Article (original research)
DOI 10.1111/ecc.12121
Volume 23
Issue 2
Start page 239
End page 248
Total pages 10
Place of publication Chichester, West Sussex, United Kingdom
Publisher Wiley-Blackwell Publishing
Collection year 2015
Language eng
Formatted abstract
Much of the literature on informal carers of cancer patients is quantitative and psycho-oncology based. This literature has established that cancer carers experience higher rates of stress, depression and anxiety than their non-caregiving counterparts, with younger female carers reporting higher rates of burden and unmet needs. The reasons behind this variation and variations in support preferences are poorly understood: some carers prefer support groups and others prefer practical support. This study takes a sociological approach to exploring carers' varied experiences. Longitudinal interviews were conducted with 32 carers of a spouse with cancers of varying stages and diagnoses in the Australian Capital Territory. Analysis, informed by the discretionary time literature, shows time-sovereignty illuminates much of the variation in carers' emotional experiences and support preferences. Carers with few competing commitments and less onerous caregiving responsibilities had time to experience and unpack the range of emotions associated with cancer, and reconnect with their spouse. These carers preferred emotion-focused support. In contrast, carers with multiple commitments had little time to themselves and viewed emotions as an indulgence. These carers preferred practical support. A time-sovereignty framework offers health and support professionals a means of understanding carers' varying needs and tailoring support services.
Keyword Carers
Cancer
Emotional
Social
Q-Index Code C1
Q-Index Status Provisional Code
Institutional Status Non-UQ

Document type: Journal Article
Sub-type: Article (original research)
Collection: School of Social Science Publications
 
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Created: Tue, 21 Jul 2015, 22:14:48 EST by Rebecca Olson on behalf of School of Social Science