Third-party disability in carers of people with dysphagia following non-surgical management for head and neck cancer

Nund, Rebecca L., Scarinci, Nerina A., Cartmill, Bena, Ward, Elizabeth C., Kuipers, Pim and Porceddu, Sandro V. (2015) Third-party disability in carers of people with dysphagia following non-surgical management for head and neck cancer. Disability and Rehabilitation, 38 5: 462-471. doi:10.3109/09638288.2015.1046563


Author Nund, Rebecca L.
Scarinci, Nerina A.
Cartmill, Bena
Ward, Elizabeth C.
Kuipers, Pim
Porceddu, Sandro V.
Title Third-party disability in carers of people with dysphagia following non-surgical management for head and neck cancer
Journal name Disability and Rehabilitation   Check publisher's open access policy
ISSN 0963-8288
1464-5165
Publication date 2015-05-18
Sub-type Article (original research)
DOI 10.3109/09638288.2015.1046563
Open Access Status Not Open Access
Volume 38
Issue 5
Start page 462
End page 471
Total pages 10
Place of publication London, United Kingdom
Publisher Informa Healthcare
Collection year 2016
Language eng
Formatted abstract
Purpose: Third-party disability pertains to the consequences of a person’s impairment which impacts on the functioning and ability of their family members or significant others. With the emergence of research demonstrating the pervasive effects of dysphagia following head and neck cancer (HNC) on the carer, the aim of this study was to identify the International Classification of Functioning, Disability and Health (ICF) domains and categories that describe the third-party disability of carers of people with dysphagia following HNC.

Method: Twelve carers of people with dysphagia following HNC participated in individual semi-structured, in-depth interviews. Categories and sub-categories identified from the qualitative analysis were mapped to the ICF using the established linking rules.

Results: The majority of the categories and sub-categories from the qualitative analysis were successfully linked to the ICF with most linking to the Activities and Participation component. A number of contextual factors were also identified as impacting on the functioning of carers. Conclusions: The ICF can be successfully used to describe the third-party disability in carers of people with dysphagia following HNC management. This information could be used by clinicians, researchers and policy makers to help establish evidence-based guidelines that include carers in the assessment and management of dysphagia associated with HNC.Implications for Rehabilitation

Clinical levels of distress and reduced quality of life have been associated with caring for a person with dysphagia following head and neck cancer.

The flow-on effects of dysphagia experienced by a carer or close family member can be understood as a third-party disability, which impacts on their functioning, activities and participation in the context of the environment and personal factors.

Using the ICF to describe the indirect effects of dysphagia on the carer may help to guide the assessment and support of this population, and advocate for the inclusion of the concerns of the carer in dysphagia management.

Keyword Carers
Dysphagia
Head and neck cancer
Radiotherapy
Third party disability
Q-Index Code C1
Q-Index Status Confirmed Code
Institutional Status UQ
Additional Notes In Press

Document type: Journal Article
Sub-type: Article (original research)
Collections: Official 2016 Collection
School of Health and Rehabilitation Sciences Publications
School of Medicine Publications
 
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Created: Mon, 06 Jul 2015, 14:37:02 EST by Rebecca Nund on behalf of School of Health & Rehabilitation Sciences